Has anybody had trouble accessing NHS treatment after a private autism diagnosis at Lorna Wing Centre?

Apologies for the long post title.

I'm going to have an assessment at the Lorna Wing Centre, privately funded because my GP says it won't be possible on the NHS.

My GP advised me to check whether I would still be eligible for NHS autism treatment (e.g. therapy) after a private diagnosis.

I asked the LW Centre about this, and they advised me to check with my local service providers.  I'm going to email them now, but I don't know if it will be possible to get a clear answer.  


I was just wondering if anyone else has had a private assessment there, and then had any trouble accessing NHS treatment?  I wouldn't have thought it would be an issue, given the LWC's reputation and the fact that they also accept NHS referrals, but I want to find out if I can.

Thanks in advance.

Parents
  • What type of treatment are you hoping to access post-diagnosis? In my experience, there is no post dx treatment or therapies for ASD. If you were talking ADHD I could understand it. I'm awaiting an ADHD assessment myself as my private dx isn't compatible so can't get prescribed ADHD meds on NHS. This is not an issue for ASD. 

Reply
  • What type of treatment are you hoping to access post-diagnosis? In my experience, there is no post dx treatment or therapies for ASD. If you were talking ADHD I could understand it. I'm awaiting an ADHD assessment myself as my private dx isn't compatible so can't get prescribed ADHD meds on NHS. This is not an issue for ASD. 

Children
  • Hello Trei,
    I hope that your ADHD assessment goes well.

    I guess what I'm hoping for is some kind of therapy or counselling to help me understand the different ways that autism has affected my life and relationships, then hopefully to help me to improve these things.  For example, I find relationships difficult and very anxiety-provoking.  Just some kind of help with that, and other things.

    I know that the Lorna Wing Centre give people a "comprehensive post-diagnostic report with detailed recommendations based on identified needs".  So hopefully, the assessment process would do part of the work, identifying the main problems and then helping me to know what I can do about them, and perhaps also where to go to get that help.

  • can i ask what they give you for ADHD because i am thinkin' of getting a diagnosis?  I know you could take meds for ADHD. Maybe your ADHD is particularly severe.