I asked my GP to refer me for assessment in August and have received a bunch of questionnaires from the ASD assessment service - autism spectrum quotient, empathy quotient, one for somebody who knew me as a child and one for someone who knows me well now.
So I asked my parents to complete the one about my childhood, and my mum has completed parts of it. Though she has left blank the observational type questions, instead adding a note to say that it was too long ago and she can't remember. Which is fair enough but aside from a yes/no tick box section all that she's provided is a comment saying that I was late talking, "shy, quiet and reserved" and that she didn't notice anything that she thinks was out of the ordinary. I'm not entirely surprised as she hasn't been particularly supportive of my seeking diagnosis and thinks that I wasn't like some autistic children she knows so I can't have ASD. Though I was hoping she would at least complete it, even if her recollections of my childhood are so different from mine.
I still need to ask someone who knows me now, but feeling really awkward about approaching friends about this, as not sure that anybody knows me that well. I'm not particularly good at keeping in regular contact with friends, so would be the first time I'd spoken to them in months (or longer...). One of the questions on the observational bit includes one with an example of "only initiates social interaction to ask for help" also makes me feel embarrassed about asking them!
The letter from the ASD psychologist stated that I'd be removed from the waiting list if I didn't return the completed questionnaires within a month including at least one of the ones somebody who knew me as a child or now, which worries me as not sure if my mum's one counts as completed! Also if my parents aren't going to be willing to provide much information about my childhood, will it be much harder to get a diagnosis?
It's frustrating. The more I read about ASD, the more it feels like it fits. But I'm doubting whether it's worth going through the stress of seeking diagnosis if it's going to be difficult to provide the evidence to back it up, beyond what I say.
I’m really sorry to hear that your mum hasn’t filled in the questionnaire quite as thoroughly as you would have liked! It obviously needs to be sent back, the delayed talking and being shy, quiet and reserved would in my mind be evidence of ASD. Most Autistic people have extremely good long term memories, perhaps type out an accompanying letter with your own answers as to how you were and the difficulties that you faced during the periods of time that they are asking about. For the record I was diagnosed without any input from family or friends so it is possible:-)
I wouldn't worry as they may want to interview your mother at some point.
As both my parents are dead the Psychologist interviewed my wife (along side me). The Psychologist accepted that there wouldn't be much early evidence but i still got a diagnosis from giving detailed accounts of my life from an early age :)
If your mum has filled in what she can, it's complete :) I wouldn't worry too much about it, it sounds like the information she has provided sounds helpful, it shouldn't matter too much that there are other things she can't remember. That's pretty common with adults, that their parents don't remember much, and it's only one part of the picture they are trying to build up of you.
My mum only mentioned a couple of things for my assessment about my childhood (that I was shy and quiet and tended to have younger friends as a kid, that I had trouble with eye contact with strangers but had got better at it) and a few things relating to now (that I was very socially awkward and often left it to the other person if a conversation wasn't something I was interested in, and that I liked to repeat things). It was a few lines really, but since it added to and was consistent with the overall picture of what information I'd provided and the assessments, that was fine. I did get asked for someone else to provide information (like a sibling or friend) in addition to my mum, but I didn't want to make my sister anxious by having her do it (it was worrying her that she couldn't be helpful and she's quite an anxious person) and felt too weird asking one of my friends, so I didn't and that didn't really have any impact.
I agree with Boating_taxonomist; as the form is for a third-party to complete, I doubt very much that it would be counted against you that your Mum has nothing more to add. It's very common for adults going through their assessment to have difficulty finding someone with clear memories of their childhood, or to have few contacts who can corroborate their autistic behaviours (particularly as we so commonly do our best to hide them from other people!) These factors will be well known to the assessors, and will be taken into account. Many adults still receive a diagnosis in their absence.
Another factor which is worth bearing in mind is that autism very often runs in families, and many parents have little idea what kind of behaviours might indicate autism. This can mean that parents are simply not aware that some of our autistic behaviours are "out of the ordinary" - it even happens that parents discover that they have many autistic traits themselves when their offspring are diagnosed. In my case, it seems that my Mum's younger brother has signs of autism very like my own, and she shares some traits with me herself; so, to her, I just didn't seem all that strange.
So my advice would be to send the forms back as they are, and to continue with the assessment process.
Thanks, that's reassuring. When I saw the size of the questionnaires I panicked a bit as assumed it meant they required a lot of detail. I'll try asking a friend as well to complete the other one as probably would be a bit easier.
Thanks, I'll send the forms back and see what they say. Hopefully I'll be able to find out how long the waiting list as well.
Things like eye contact I'm better at with people I know well, so possibly was better at it with my parents when I was a child, which might be why my mum didn't notice anything off. U had more difficulties at school than at home when I was growing up at least.
My youngest brother was diagnosed with Aspergers when he was a child. Another one of my brothers also has similar traits, though he's closer to my age so also was before ASD started becoming more recognised by schools. Possibly my mum thinks it's unlikely that two or three of us might have ASD (out of her 7 children - I come from a big family), but that's just speculating.