Published on 12, July, 2020
In March 2019, I was given a full diagnosis of Autism (Asperger's Syndrome). It did come as a shock to both me and my family. I'd always known that I was different to my friends and a bit quieter, but I legitimately thought that was OK. It now clearly wasn't. I started University last Autumn (don't want to reveal what/where I studied at) but after I received no support for my diagnosis and mental health, everything plummeted. Emails weren't getting answered quickly and when they were, it was always on the lines of "you're lazy, you've got no brains etc". I made the decision to stop going, the environment was toxic. Some of the students were nasty towards me, often blanking me out during group work sessions or leaving me out of events for no apparent reason. I live at home with my parents. For the past few months since the diagnosis, I've realised that I'm a huge failure. I have a lifelong disability and being the only family member with a disability, I've been too ashamed to open up to anyone about how I feel, since no-one can relate to me.
I finally told some family about my diagnosis but they reacted negatively. Calling me once again "lazy" and "you didn't try hard enough." I haven't spoken to them and have even considered cutting them out of my life altogether. I have a boyfriend and been together for nearly two years. He was shocked by my diagnosis, but is still with me. I've told him all the time that I'm stupid, useless and that he should look for someone else. I've been trying to get help and support to come to terms with my diagnosis at age 20, but to no avail. Either long waiting lists, expensive private appointments or no replies to my messages. I literally have nothing left.
I'm fully convinced that I'm a total failure, the life that I truly wanted is now ruined. My education life has always been rocky from the start. This was my dream Uni and course, but I feel that I've been pushed away due to their lack of understanding. I'm generally paranoid to look for a job. Not because I don't want to, not because I'm trying to be lazy. I'M TOO ANXIOUS TOO. But I need the money. I do get some from a family member but that's not me doing it for myself.
I'm very depressed and basically, there's no hope left. I'm now in debt. Alone. Struggling. This forum posting here is a risk. I used to post on a different website but I got trolled, so here I am opening myself up again...
If someone/anyone can truly help me before this situation gets worse, I'll be eternally grateful.
Ally.
If you are officially diagnosed, you are elegible for a grant of about £2500 per year, that the University is supposed to use to offer you a Mentor. Our son finished his first year at Durham with zero help and is currently taking a year off on medical grounds. He is currently working part time. Perhaps you could take a year out it would provide you with some rest bite and a chance to earn some money. It might focus the minds at the University to take your mental disability seriously and provide better support on your return??
I had no idea about that! When I asked about funding and support, I was told that I wouldn't be entitled to anything other than a round of tests which wouldn't guarantee the software I needed, nor a mentor either. I haven't been able to finish my first year and up until now, no-one has followed up with me about carrying on the course. So, I've just pushed it away and walked off to be honest. Due to my mental stability, I haven't been able to hold down a paid employment role. Only volunteering but that hasn't been recently.