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Waiting for a diagnosis

NAS24016
over 6 years ago

Hi everyone

I am new to this site but wondered if anyone has any helpful information. My 15 yr old son is currently waiting to see the community Paediatrician for diagnosis, we have been waiting since April and have now been told it will be the Autumn when he gets an appointment. In the meantime he has been diagnosed by a CAMHS child psychiatrist with ptsd which symptoms are similar to those of asd. He has also attempted suicide and has been receiving help on a one to one basis with a CAMHS core worker but have now been told that he can only have 2 more sessions unless we insist on him receiving more. School have been an absolute nightmare, retraumatising him and not making reasonable adjustments for his mental health, we have insisted on now applying for an EHC plan which the school have now agreed to and an application for a needs assessment has been done, we are waiting to hear back from the LA. Today in the car we were taking the dogs to the new groomers and because I got lost and one of the dogs wouldn't sit still my son became really agitated and aggressive and started to punch himself in the head which he has done previously but not for a while now. Just wondering if anyone has any advice as to how to speed up the appointment for asd diagnosis, is it worthwhile trying to get a private diagnosis? and tips if we need to appeal the EHC needs assessment? 

All help would be very much appreciated from a desperately worried mum xx 

Parents
  • over 6 years ago

    NAS24016 said:
    but have now been told that he can only have 2 more sessions unless we insist on him receiving more

    Treatment should be based on clinical indications rather than on your wishes. If his mental health is substantially better then he can be discharged from their care but not otherwise. What does his GP have to say about the situation?

    "Reasonable adjustments" are relevant to either someone with a long term mental health issue (e.g. depression) or for a disability like autism. He should be getting reasonable adjustments for his autism e.g. should be excused from noisy, crowded situations like school assemblies, should be getting appropriate teaching such as more one-to one or small group teaching. If he was being taught and socialised in situations and environments that suit a child with autism then I would expect his mental health problems to decline and possibly be resolved.

Reply
  • over 6 years ago

    NAS24016 said:
    but have now been told that he can only have 2 more sessions unless we insist on him receiving more

    Treatment should be based on clinical indications rather than on your wishes. If his mental health is substantially better then he can be discharged from their care but not otherwise. What does his GP have to say about the situation?

    "Reasonable adjustments" are relevant to either someone with a long term mental health issue (e.g. depression) or for a disability like autism. He should be getting reasonable adjustments for his autism e.g. should be excused from noisy, crowded situations like school assemblies, should be getting appropriate teaching such as more one-to one or small group teaching. If he was being taught and socialised in situations and environments that suit a child with autism then I would expect his mental health problems to decline and possibly be resolved.

Children
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