Published on 12, July, 2020
Hi, hoping to get some views and experiences from other parents of children with ASD. Our little girl is now 2 yrs 2 months old. Officially, she is pre-diagnosis and is due for her Multi-disciplinary Assessment later this year. We have had meetings with the Paediatrician, and all things point towards an ASD diagnosis, which we are prepared for.
Obviously, she is still very young, but we feel it would help us to get the experiences and views of other parents who've already experienced similar to us.
She currently has no words, so no coherent speech. She makes 2-3 repetitive noises, some constantly for long periods. She doesn't really ever mimic us, sometimes when we say "bye" to her, we'll get the occasional "bah" noise, but not the actual word. She doesn't make any attempt to talk to us, and her non-verbal communication isn't good either, i.e. she has never really pointed for anything she wants. She doesn't usually respond to her name, maybe 2-3 times out of 10. She always lacked eye contact as a baby, this has improved slightly but I would guess not to the point of being considered normal. She has good fine motor skills. She was a late walker (18/19 months), she had 'cruised' for a very long time before letting go to walk. She never crawled, and always hated it on her tummy as a baby. Her play seems relatively age-appropriate, and there is no doubting she is intelligent - but very much lacking in social engagement and interaction, which we imagine are stereotypical traits within ASD.
We just wondered, if you're the parent(s) of a child with ASD (or even a now grown-up child), what experiences did you have with speech and language delay (if any)? We've heard stories of some children with ASD not talking until they were 4-5 years old. We haven't heard that first-hand too many times, so would be good to hear from parents themselves.
If your child did have speech/language delay, what things did you do to help/do you feel could help? (i.e. we've tried Makaton, but it just doesn't work with her at this stage). We've done a 'Let's Get Talking' module via the NHS, but it was more about forming strategies for us to encourage speech, but our daughter doesn't seem ready to talk just yet anyway.
As and when your child did start to talk, did they 'catch-up' with their peers, to some degree? Appreciate everyone with an ASD diagnosis is different, but any experiences you can share would be reassuring for us.
Many thanks in advance!
I don't think I talked until I was about 3. I was taken for a diagnosis at age 4 (1990) for possible full blown autism, but found not to have that and there was no Asperger's diagnosis at the time. I was put in special needs, but I not only caught up by the time I left primary school - I was actually racing ahead and already reading at an adult level. Broadly excelled academically (ended up just missing out on Cambridge), but not socially.
Thanks for the reply Stephen. Glad to hear you weren't held back too much by the sounds of things!
It would be interesting to know what you were like (speech-wise) at the same age as our daughter (2 yrs 2 months), currently she has no words at all. She makes quite a lot of noises, but these are more like hums, groans and moans rather than actual 'phonics' of proper words. She also blows raspberries quite a lot!