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Position on Suramin

Finnegan
over 6 years ago

Hello everyone,

I came on the forum to see if anybody had posted anything about the Suramin & Autism Trial at UCSD (Cell Danger Respone Theory). I don't see anything on here about it, or on the website. Or if anyone has an opinion on it who maybe knows more about this research?

Does anyone know the position of the NAS on this trial? There was also a report on it in last weeks Economist. This is one link of many. If you punch Suramin and Autism into google you will get others.

www.nofone.org/dr-naviaux-q-and-a-suramin

Parents
  • over 6 years ago

    Yes, I found it very encouraging.

    I was wary because there is so much junk science on autism. Didn't want to get my hopes up and discover it was trash. It would be a shame if that understandable wariness led to a potential treatment being overlooked though.

    The doses of Suramin they used were very low, between 1/15th and 1/30th of the dose frequently administered during cancer treatment and the side effects did not appear to manifest at this dose (other than a temporary skin rash). But it was a small sample.

    As you say, it is not a cure. But if it could significantly reduce the symptoms, it could be for autism what ritalin is for adhd, lithium for depression, beclamethasone for asthma, etc. Potentially something people would have to take for life I suppose.

    Which makes it complicated, I guess. Because I would guess nobody has taken suramin or a drug like it for such a long time as that. What it would do for you if taken regularly for 50 years, who knows?

    Hopefully the researchers will get the funds they need to progress this speedily. It could be one the most cost effective investments the world has ever made.

Reply
  • over 6 years ago

    Yes, I found it very encouraging.

    I was wary because there is so much junk science on autism. Didn't want to get my hopes up and discover it was trash. It would be a shame if that understandable wariness led to a potential treatment being overlooked though.

    The doses of Suramin they used were very low, between 1/15th and 1/30th of the dose frequently administered during cancer treatment and the side effects did not appear to manifest at this dose (other than a temporary skin rash). But it was a small sample.

    As you say, it is not a cure. But if it could significantly reduce the symptoms, it could be for autism what ritalin is for adhd, lithium for depression, beclamethasone for asthma, etc. Potentially something people would have to take for life I suppose.

    Which makes it complicated, I guess. Because I would guess nobody has taken suramin or a drug like it for such a long time as that. What it would do for you if taken regularly for 50 years, who knows?

    Hopefully the researchers will get the funds they need to progress this speedily. It could be one the most cost effective investments the world has ever made.

Children
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