Stem Cell treatment

Hi there,

I have a 12 year old girl diagnosed with Aspergers at age of 3. She is coping well academically, but struggling with social interaction and friendship terribly! We tried all sorts of supports but nothing seemed working. We are debating if to try a course of stem cell treatment. It's such an innovative, invasive and expensive treatment, just wondering if anybody out there have ever experienced or knew somebody had such treatment! There are quite a few centres in Europe. They charge  between $10000 to $20000. We are not sure if they are as good as they claimed to be. Any thoughts/ advices would be greatly appreciately!

Thank you very much!

Gemma

Parents
  • Hi Gemma we are having great difficulty with my grandson he will be 6 in a few month. He has autism and delayed speech and language and delay social skills. My daughter is finding it very hard with him at the moment, he’s been suspended from school twice and it’s upset her. He is a big boy for his age and he’s just lashing out but he won’t stop till he gets tiered, that within a few minutes. He will go upstairs for hours if he’s got his phone or watch Netflix with out any bother. But won’t socialist with many ppl. He is temper is getting worse and he punches hard and kicks and scratch for just simply not getting his own way. Is there any help in the way of controlling his temper. 

    Any help would be great. Thank you 

  • Hi Sue,

    I think you would get more responses by starting your own thread; this one is very old and the OP may no longer be active. 

    I feel like I should start by reiterating, as others have said, that there is no cure for autism. Stem cells do not do anything except drain your wallet (and that money could be better spent on interventions that would actually help, such as CBT, sessions with a speech therapist or counselling as your grandson gets older). There are, however, ways to work with your grandson that can greatly improve things re. his temper. 

    "He is a big boy for his age and he’s just lashing out but he won’t stop till he gets tiered, that within a few minutes."; is he getting to a point where he seems to snap and become inconsolably distressed along with the lashing out, then after a few minutes of this gets exhausted and needs to rest?
    That is a common pattern in autistic people. We find it very difficult to process negative emotions, so they build up throughout the day until we can't take it any more and we experience what can only be described as an emotional explosion (the "meltdown"). Looks like a tantrum, but the root cause is very different. 

    Do you find that when he is lashing out after "not getting his own way" that even giving him what he wanted does not stop the upset? That is another strong sign that it is a meltdown you are dealing with rather than a tantrum.

    I gave another parent some advice on meltdown management that you and your daughter might also find useful when it comes to dealing with your grandson. https://community.autism.org.uk/f/introduce-yourself/12975/new-diagnosis-help 
    Often the reaction to "not getting their own way" is also partly a "deviation from expected script" thing, especially if the thing they wanted was to go somewhere or do something.

    He may never socialise with many people, he may become a massive extrovert (some of us do. I did). That's not necessarily a bad thing as long as he's happy with the situation though. Slight smile He is who he is. Try not to worry about the 'going off alone for hours' too much either, I expect it's his way of decompressing and coping with the stresses of the day, and if he is allowed to do it he will have fewer of the screamy-kicky-meldowny times than if he is forced to spend time around people instead.

    The NAS parent to parent helpline may be useful for you or your daughter in developing strategies that help your grandson; https://www.autism.org.uk/services/helplines/parent-to-parent.aspx

     
    Also, what is the school doing to address this? Do they know about the diagnosis?
    He should not be being suspended for reacting in the way he does to stress if it's an autism thing (which is very likely; it's common at that age to lash out when feeling unable to communicate their feelings any other way due to the communication issues that come with the autism). They need to be coming up with some strategies to help him de-stress at school and access his education as easily as his non-autistic peers. >>

    Hope some of this helps.

    Emma

Reply
  • Hi Sue,

    I think you would get more responses by starting your own thread; this one is very old and the OP may no longer be active. 

    I feel like I should start by reiterating, as others have said, that there is no cure for autism. Stem cells do not do anything except drain your wallet (and that money could be better spent on interventions that would actually help, such as CBT, sessions with a speech therapist or counselling as your grandson gets older). There are, however, ways to work with your grandson that can greatly improve things re. his temper. 

    "He is a big boy for his age and he’s just lashing out but he won’t stop till he gets tiered, that within a few minutes."; is he getting to a point where he seems to snap and become inconsolably distressed along with the lashing out, then after a few minutes of this gets exhausted and needs to rest?
    That is a common pattern in autistic people. We find it very difficult to process negative emotions, so they build up throughout the day until we can't take it any more and we experience what can only be described as an emotional explosion (the "meltdown"). Looks like a tantrum, but the root cause is very different. 

    Do you find that when he is lashing out after "not getting his own way" that even giving him what he wanted does not stop the upset? That is another strong sign that it is a meltdown you are dealing with rather than a tantrum.

    I gave another parent some advice on meltdown management that you and your daughter might also find useful when it comes to dealing with your grandson. https://community.autism.org.uk/f/introduce-yourself/12975/new-diagnosis-help 
    Often the reaction to "not getting their own way" is also partly a "deviation from expected script" thing, especially if the thing they wanted was to go somewhere or do something.

    He may never socialise with many people, he may become a massive extrovert (some of us do. I did). That's not necessarily a bad thing as long as he's happy with the situation though. Slight smile He is who he is. Try not to worry about the 'going off alone for hours' too much either, I expect it's his way of decompressing and coping with the stresses of the day, and if he is allowed to do it he will have fewer of the screamy-kicky-meldowny times than if he is forced to spend time around people instead.

    The NAS parent to parent helpline may be useful for you or your daughter in developing strategies that help your grandson; https://www.autism.org.uk/services/helplines/parent-to-parent.aspx

     
    Also, what is the school doing to address this? Do they know about the diagnosis?
    He should not be being suspended for reacting in the way he does to stress if it's an autism thing (which is very likely; it's common at that age to lash out when feeling unable to communicate their feelings any other way due to the communication issues that come with the autism). They need to be coming up with some strategies to help him de-stress at school and access his education as easily as his non-autistic peers. >>

    Hope some of this helps.

    Emma

Children
  • Hi Emma thank you so much for that information. The school is now putting a plan together and has a Speach and language expert come in for a few days to see if they can visually by picture do a plan so cross fingers. To be honest I don’t know how to do my own thread but I will get someone to help me lol. You have given me a few answers thank you so much for that. We will definitely try your advice and see what changes it will make . To be honest I worry that he will be lonely and I feel for him , but I suppose we have to accept his needs and will have to try and learn with him so he will be happy . I have read so much about stem cell and I know know it won’t help so I can put that to bed lol. Thank you so much for replying