OCD? Internalised PDA? Or is it just another autistic trait my sons developed?

Just over a year ago August 2023 my son age 6 developed an interest in numbers, he isn't advanced for his age if anything he’s behind but he developed an interest in asking me sums and initially he would answer them differently to how I would such as 

what’s 5 + 3, I’d say it’s 8, he’d reply no it’s 7 and 1, 

Fast forward to the present, he asks me sums from the minute he opens his eyes until he settles at night. It’s very very repetitive. He doesn’t always know the answer to these sums he’s asking and he doesn’t like me to ask him sums. When he wakes at night he can ask me sums not always but on occasion. If he’s colouring in and uses the wrong colour by mistake he gets very upset and angry with himself, he can’t move on from the mistake until the next day.

Upon returning to school in August 2024 he was getting very upset at the end of the day, he would say the same things most days “I’m doing everything” “ I’m not doing everything anymore” he wasn’t able to elaborate further what he was meaning. He was exhausted though he fell asleep sitting up twice in that week.

I contacted the school and said I was keeping him off the following day to rest. School fed back to me that he puts these high expectations on himself and he wants to finish a full worksheet even when the Rest of the class are having brain breaks, he is the one who wants to do more work after he’s completed his tasks for that morning/afternoon. They said if he makes a mistake he’s hard on himself and gets very upset. He can’t move on from it until he can’t see the mistake anymore, teacher has started putting white sticky labels over any mistakes so its completely out of his sight. They said he talks and is very much a chatterbox. They don’t seem overly concerned. Whereas I am concerned that he’s not feeling able to give himself time to rest and play with his special interest toy like he has always done on previous years at school and he’s exhausting himself to the point he’s in tears on our car journey home.

Upon hearing what the school said I was shocked as from what my son was saying I thought that the school were the ones pushing him to apply himself more. Now I’m unsure how to support him with these high expectations he has on himself. He isn’t at the stage where we could have a back and forth conversation about worries, solutions, realistic expectations etc. I have been implementing 5 minute breaks for myself and my son. To try model that even mum needs a break after a task. I say aw my body/brain needs a rest. 

Since August 2023 my son seems to have changed, he went from a boy who could lash out, meltdowns, school refusal to now showing signs of Rejection sensitivity dysphoria, he people pleases, he masks, he worries. He thinks his teacher will be disappointed in him. If there’s a person on tv that’s loud or raising their voice he would say turn it over as it panics him, if I’m giving his brother a row he gets panicked and says it’s okay he’s a good boy. If he hears a baby cry when we are outdoors he gets worried and will keep asking about them for a long time after. A dog barking in the vet and he thought the dog didn’t like him and that’s why it was barking. He can’t always make decisions such as go for a shower, brush your teeth, getting dressed, leave the house he would be in tears and say I don’t know what to do and these situations when he can’t make his mind up go on for hours and as a parent it’s very upsetting to see him like that.. 

My sons dad is diagnosed with OCD and puts very high expectations on himself.

I am now wondering if this is early warning signs of OCD? Does he feel so uncomfortable in his surroundings at school that he’s wanting his workload increased as a coping mechanism.

Is what he’s experiencing internalised PDA? freeze/fawn internalised meltdowns? Is he over working himself as that’s a way of gaining his autonomy and asserting control over himself as he can’t control his surroundings? 

Parents
  • OCD is common in autistic people, but I'm not qualified to advise you if he has this - you would need to consult a medical professional. Does he have SEN support at school? Can they arrange for him to see a child psychologist?

    I am wondering why the school are giving 6 year olds worksheets that are so long they need "brain breaks" to prevent becoming exhausted? I understand his need to complete them, so could they cut the sheets up into two or three, then give him one piece at a time to complete?

    Regarding his noise sensitivity, maybe think about him using headphones in situations where you can expect loud noises - you can't always avoid it though, so if he does get panicky just allow him quiet time in a safe space to recover.

    I would also suggest making up a schedule for when he is to have a shower, get dressed, have breakfast etc.  I don't know if he can read well or tell the time yet (understanding time is unusual before age 7) so the schedule can be in a picture sequence format - for example you could have a picture of a shower, then one of a toothbrush, then one of some clothes, then one of a bowl of cereal - then tell him when it is time to start and he can follow the sequence through.

    It's a good idea you had to set him an example of taking breaks - hopefully this will in time help him to realise he can stop and relax periodically.

  • He is in a sen base full time. 

    He isn’t able to tell the time yet. I use a daily schedule at home on the weekends & holidays and I have a weekly visual calendar that is on the living room wall With proper pictures of where he will be throughout the week for school/home/club/outings/appointments to try help him make sense of his week. 

    He wears ear defenders when he’s with me outwith the house and at his afterschool club. School have said he doesn’t always wear them in school.

    I asked for a weekly school time table and the teachers response was I can’t share that with you as it’s not set in stone what we will do each week. I said that really not helpful as he asks me to call the school to see what he’s going to be doing each morning. She just said I’m sorry but I can’t give you a timetable as it’s subject to change. 

    With the loud noise I think it’s more to do with worrying why a baby was crying and him asking if the dog didn’t like him, how he could think the dog didn’t like him just broke my heart. 

    School have a very different view of my son to what I do and they see him as more capable and managing school better than what I would say he is.

    Last year I had to record him in vulnerable moments having meltdowns and shutdowns when he was leaving to go to school and coming home from school to show the educational psychologist how challenging he was finding things. She said it looked like his nervous system was at it’s limit and he was exhausted from the school day. Which was great that someone seen what I seen but this year it’s a new teacher, new support assistants and new educational psychologist who all see him as doing well. 

Reply
  • He is in a sen base full time. 

    He isn’t able to tell the time yet. I use a daily schedule at home on the weekends & holidays and I have a weekly visual calendar that is on the living room wall With proper pictures of where he will be throughout the week for school/home/club/outings/appointments to try help him make sense of his week. 

    He wears ear defenders when he’s with me outwith the house and at his afterschool club. School have said he doesn’t always wear them in school.

    I asked for a weekly school time table and the teachers response was I can’t share that with you as it’s not set in stone what we will do each week. I said that really not helpful as he asks me to call the school to see what he’s going to be doing each morning. She just said I’m sorry but I can’t give you a timetable as it’s subject to change. 

    With the loud noise I think it’s more to do with worrying why a baby was crying and him asking if the dog didn’t like him, how he could think the dog didn’t like him just broke my heart. 

    School have a very different view of my son to what I do and they see him as more capable and managing school better than what I would say he is.

    Last year I had to record him in vulnerable moments having meltdowns and shutdowns when he was leaving to go to school and coming home from school to show the educational psychologist how challenging he was finding things. She said it looked like his nervous system was at it’s limit and he was exhausted from the school day. Which was great that someone seen what I seen but this year it’s a new teacher, new support assistants and new educational psychologist who all see him as doing well. 

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