ASD Carer for University

I'm afraid I don't know the ins and outs of the system but what are you looking for?    24/7 cover or someone to help out with stress management?

All of unis have a student support team-  have you spoken to them?

Also, is your child going to be attending a local uni just for the lectures or staying full time in halls and having to sort out meals and washing etc?      Will they be attending miles away?

I know a girl who had a taxi provided that meant she lived at home - no stress of having to hand around and get lonely if she couldn't break into the student social life.

There's lots of options - what are you looking at?

Thank you for your response

Going to a uni a long way from home living in halls

Council care assessment has awarded 40hrs support a week - due to need of continuity (does not like lots of different people helping him) and also someone to be on call - he needs someone to live in.

Kind of a big brother/sister role - helping with organisation, food, getting to the right place and ensuring can socialise and participate (has other conditions not just ASD).

We thought somebody in their last year of the uni without a job next year may like to do this - gap year kind of thing - but university are refusing to help us find someone - in fact they are being extremely difficult.

We have had comments like we do not do things like that, we can't support somebody like that and most recently we do not think he needs a carer (they have never met him!).

My worry is we are running out of time and without this person he can not go - or I will have to go and support and that is not going to be a very good solution him having his Mum at uni with him!

He is very bright - so on one hand I think adjustments should be made so that he can attend this place and on the other why should he be going someone that so obviously does not want him....

Hi Mum, I've held back form commenting up to now because I didn't think I had anything useful to contribute.

One thing I will share with you is that as an autistic adult I moved from one end of the country to another in order to attend a specific university. Like your son, I was super bright. However, it was an unqualified disaster and the whole experience has scarred my life ever since.

If only I could turn back time, I would never move so far away from home to study and would look for alternatives to mainstream university such as the OU which would allow me to study at home.

Hi Mum, I've held back form commenting up to now because I didn't think I had anything useful to contribute.

One thing I will share with you is that as an autistic adult I moved from one end of the country to another in order to attend a specific university. Like your son, I was super bright. However, it was an unqualified disaster and the whole experience has scarred my life ever since.

If only I could turn back time, I would never move so far away from home to study and would look for alternatives to mainstream university such as the OU which would allow me to study at home.