11 year old keeps going to the toliet everywhere but the toliet

My 11 year old son has HFA. He struggles with a number of things one of which has been bet wetting. I would often find puddles of urine on his bedroom floor. However it's been getting more and more obvious that it's not actually during the night whilst he is asleep. Tonight just 10 minutes after his quiet time had started I caught him knelt on his bed weeing onto the mattress. 

When I ask him why he just says he doesn't know. I am so stressed out constantly cleaning but now I know he is doing it deliberately I am angry and Confused. I keep having to buy new mattresses because even with protectors on he just pulls them off. 

Any suggestions for this exhausted mum? 

  • My friend has a 17 year old who does something similar...in bottles and glasses in his room. Otherwise his hygiene is fine and she can't wrap her head around it. If we find a reason behind this one, she'll want to know.

  • He could be doing it just because he likes the feeling or experience and attention or just finds it interesting.    

    We tend to 'stim' - a behaviour that we find soothing or comforting - the classic is rocking and jiggling legs or pulling our own hair - it's why they invented those fidget toys.

    If it's something he's enjoying, it could be the splashing noise or the wetness - a common stim is having extra-long showers - so many ways that the cascading water can stimulate our brains - water drumming on top of the head etc.

    Can you work out if it's a stim?

    The trick then is for you to be able to satisfy the need for the brain stimulation in a more useful way.

  • bedroom is his agoraphobia space.... his safe space, that he doesnt want to leave... not even to go to the toilet. possibly.... anyway thats just my thinking on it, not proffesional.

  • of which googling it i find its perhaps correct "Agoraphobia is a type of anxiety disorder. A person with agoraphobia is afraid to leave environments they know or consider to be safe."

  • of which to context this idea mpre, at night time when i was little i always used to just go behind a cupboard in my room lol dont think anyone noticed... theres a sense of discomfort every time i leave my room, judgment, feeling weird, i dunno i cant place it but i can think on it, same feeling as agoraphobia. mostly at night for me, i guess perhaps i dont want people to think im walking around at night... anyways i piss in beer bottles now when i feel too discomforting to go down to the bog then empty them when everyones at work. so i do feel giving him a alternative like a bed pan or whatever to piss in would solve your issue. dont get why we got rid of them tbh, they were perfectly normal and acceptable in ages past.

  • which in that case perhaps a old fashioned bed pan will provide a suitable alternative for him?

  • possibly cant be bothered going all the way to the toilet. perhaps doesnt want any interaction and going to the toilet feels like it could trigger some interaction. doesnt want to leave the comfort of his room possibly it can come down to?

  • Hi. I really feel for you, even though my daighter doesn't wet the bed, she does miss the toilet regularly ( I have puddles on the floor), mess her pants,  and needs constant prompts to put new pants on etc. She is a high functioning autistic child who is 10 years old (11 in October). She also has lots of sensory issues and often refuses to go to school. One day it took me 45 minutes to get her to school, but that's another story.

    When he is in his bedroom he is in a comfortable environment  so he may not like going to the toilet as he has to leave his room..Also autistic children find it hard to focus on a few things at once. My daighter plays games online and I think she puts off going to the toilet, as she often get fixated with things..Hence puddles on the bathroom floor, mess in her pants. I think the gaming becomes her main focus rather than the fact she needs the toilet.

    There isn't an easy solution to be honest but I think it is important to tell him how the mess affects uou and how it's really important to go to the toilet otherwise his room would start to smell. Perhaps keep bringing up the importance of hygiene. I know my daughter finds it hard to see other people's points of view and sees things very black and white. At the moment I have issues with her lack of motivation towards school. 

    I know how you feel as I feel totally stressed out some days and extremely exhausted. I am absolutely certain your son will improve with time. Try to remain calm , which is hard and keep reminding him why going to the toilet is so important. 

    Take care.