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Advice for sharing recent diagnosis with Son (8 Years old)

Naomi
over 3 years ago

Hi All i'm new to the group

I'm after some tips and advice for sharing our 8 year old sons recent ASC diagnosis with him. I've read up the advice from the NAS website.I'm after some insider insight from experiences of parents who have already been through this, or adults who have been through the sharing of their diagnosis.

I am really conscious to do this in the best possible way for our very much loved son. He was diagnosed in the last 4-5 months and it is not sitting right with me that we havent yet shared the information about him with him yet. We dont want it to be a secret and we are so proud of who he is.

I would love it please if you can share any personal do and dont's or words of caution.

Many thanks in Advance 

Parents
  • over 3 years ago

    I was diagnosed at 3 and from memory my parents shared it once with me when i was about 10. I didn't understand what they were on about so ignored it until i self diagnosed at 50 to then be told by the family, again.

    My mother focussed on the science (of the 70s), explained my left brain was poorly connected to my right, etc. This seemed daft given i was "brainy." Of course i had loads n loads of social difficulties but that didn't get explained, prob cos back them my mother or doctors didn't either. It was the social difficulties I'd have liked empathy, sympathy and validating. Being alone in the school yard, not knowing how to connect, getting bullied, being a bundle of anxiety around people.

    I'd say focus on the potential key difficult experiences, how he experiences them, and what impact it has on him. I really like the book All Cats Have Autism/Aspergers, I use it as an adult to share with people, plus Inside Autism Looking Out. The ADHD one with dogs is also helpful even for ASD. The book encourages sharing of difficulties and experience from the child's perspective. It's worked well between a friend and her son and when he saw it in my house he exclaimed how much he loved it.

Reply
  • over 3 years ago

    I was diagnosed at 3 and from memory my parents shared it once with me when i was about 10. I didn't understand what they were on about so ignored it until i self diagnosed at 50 to then be told by the family, again.

    My mother focussed on the science (of the 70s), explained my left brain was poorly connected to my right, etc. This seemed daft given i was "brainy." Of course i had loads n loads of social difficulties but that didn't get explained, prob cos back them my mother or doctors didn't either. It was the social difficulties I'd have liked empathy, sympathy and validating. Being alone in the school yard, not knowing how to connect, getting bullied, being a bundle of anxiety around people.

    I'd say focus on the potential key difficult experiences, how he experiences them, and what impact it has on him. I really like the book All Cats Have Autism/Aspergers, I use it as an adult to share with people, plus Inside Autism Looking Out. The ADHD one with dogs is also helpful even for ASD. The book encourages sharing of difficulties and experience from the child's perspective. It's worked well between a friend and her son and when he saw it in my house he exclaimed how much he loved it.

Children
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