Scared for the future

My Son is 4 and is currently under various specialists for suspected ADHD and Autism. 

Can anyone tell me how long it took for the overall diagnosis? We’ve been lucky and have had paediatrician appointments and were due to go to another appointment next month. My son is also under a Speech Therapist, Specialist Nursery Nurse, Child Therapy, we’ve been asked to take part in the Webster Stratton course and were more than willing to we’ll do anything to help our little one. But nobody is saying how long all the assessments are going to take. I’ve heard it can take years. We’re having all these appointments and they just seem to be going nowhere. 

My sons ADHD is pretty severe he has no road safety, he runs off becomes overwhelmed very easily. Both the Autism and ADHD are making life hard for him he’s not mixing with other children and has his own 1-1 support in nursery.

I’m just so worried for the future I had a pretty bad time at school with bullying and I keep thinking people are going to be mean to him and single him out when he does go to full time school or worrying how he will cope as he can only do 3 hours a day in nursery he would no way cope with a full day. Things just seem so overwhelming I just can’t stop worrying about him.

Parents
  • Hi NAS66396,

    My name is Natasha.

    While I cannot give you an answer, I can offer support as I am going through the same type of issue with my son. He is 2ys 3mths and we are currently jumping through every medical hoop as you are and the frustration is mounting.

    Currently my son has just met with a paediatrics consultant and we've been told there is a 6mth waiting list for speech and language therapy so have paid for private assistance while we wait.

    My son also has no awareness of danger and will run off into roads, in front of swings, bikes, towards dogs he doesn't know etc....I resonate with your worries and hope you get the answer you need. I have gotten to the point where I have anxiety dreams about awful things happening to my son, but I've learnt that there is nothing I can control here. Even if our sons were deemed 'normal', there is a chance they could be bullied, unfortunately kids are awful to each other at times.

    So, I would just say what has been said to me and all we can do is provide them with a loving home, support system and ensure WE as parents are doing everything we can - which you obviously are and take comfort in that.

    It's easy to get caught up in the what if's but I have pushed myself to take a step back and just love and enjoy the moment I have with my son, because I don't want to look back in 10 years and not remember the times when they were small and joyful.

    Sorry, I couldn't help you but I hope you know you're not in this alone.

Reply
  • Hi NAS66396,

    My name is Natasha.

    While I cannot give you an answer, I can offer support as I am going through the same type of issue with my son. He is 2ys 3mths and we are currently jumping through every medical hoop as you are and the frustration is mounting.

    Currently my son has just met with a paediatrics consultant and we've been told there is a 6mth waiting list for speech and language therapy so have paid for private assistance while we wait.

    My son also has no awareness of danger and will run off into roads, in front of swings, bikes, towards dogs he doesn't know etc....I resonate with your worries and hope you get the answer you need. I have gotten to the point where I have anxiety dreams about awful things happening to my son, but I've learnt that there is nothing I can control here. Even if our sons were deemed 'normal', there is a chance they could be bullied, unfortunately kids are awful to each other at times.

    So, I would just say what has been said to me and all we can do is provide them with a loving home, support system and ensure WE as parents are doing everything we can - which you obviously are and take comfort in that.

    It's easy to get caught up in the what if's but I have pushed myself to take a step back and just love and enjoy the moment I have with my son, because I don't want to look back in 10 years and not remember the times when they were small and joyful.

    Sorry, I couldn't help you but I hope you know you're not in this alone.

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