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Desperate Please Help ~ 4 Year old autistic daughter wont eat?

disneyprincess
over 12 years ago

Hi,

I am new to this forum. My daughter is 4 years old and was diagnosed with autism in July 2011.

She has an extreemly restricted diet and up to 3 weeks ago would only eat Petits Filous Yogurts and Biscuits (Heinz Biscotti, and Tesco Rich Tea).

Petits Filous have recently changed their packaging and now she will only eat Hinz Biscotti and Tesco Rich Tea biscuits.

However, she has began to eat less and less biscuits as the days have progressed and today has only eaten about 10 biscuits all day.

She drinks robinsons squash reguarly. We do give her minadex but this has recently been discontinued.

I really need some advice, I know that autistic children have restricted diets but I havent been able to find example of any that are this restrictive.

She seems extreemly tired, she was full of energy before when she ate the yogurts but now she looks very pale and is losing weight. She starts school in 2 weeks at an autistic resource base school but I'm worried she wont have the energy.

I have booked an appointment to see the GP on Monday to discuss any suppliments such as meal replacement drink that we could possibly give her but these would need to be mixed in with her orange squash so they couldnt be milkshake based and I dont know if supplement drinks exist which are fruit juice/squash based??

My health visitor is out of her depth and says they cant help and our local dietician says their refferal list is closed due to too many cases.

I have got a paediatrician appointment on the 5th October but this is quite a time away yet.

Thanks for reading this,

Please help, I dont know what to do......? Cry

Parents
  • over 12 years ago

    Hi, Thanks for such a great reply.

    When they changed their packaging I went around every shop buying all the old pots up, Ive got a bag full of them in the cupboard and was spooning the yogurt into the old pots. She never saw me do this but has stopped eating them altogether. I am questioning whether they have changed the flavour slightly of the yogurt unless she has overheard me discussing with people what I am doing?

    I contacted Petits Filous but they havent responded to my email, I expect they thought I was a crazy women!!

    We definately need to see a specialist, we last saw the dietician in February 2011, she seemed happy that my daughter was only eating yogurts and biscuits, no further appointments were made. However today my daughter has only eaten about 5 rich tea biscuits and now she is even refusing to eat ones which are not ASDA brand...Cry

    I rang the GP This afternoon as she has developed ezcema on her face and has cracked lips which seems like her immune system is weakening due to 3 weeks of just biscuits?? He told me that is is not their expertise to treat anything this complex and I need to see a dietician which I know but I need to be referred. 

    I did get her to peel a banana with me and lick it which was a start this afternoon, we are going to try more playing with food this weekend.

    You have had such a fantastic result with your son and have given me some great ideas to try, especially the treat bag and picnic.

    Thanks so much for your help Smile

Reply
  • over 12 years ago

    Hi, Thanks for such a great reply.

    When they changed their packaging I went around every shop buying all the old pots up, Ive got a bag full of them in the cupboard and was spooning the yogurt into the old pots. She never saw me do this but has stopped eating them altogether. I am questioning whether they have changed the flavour slightly of the yogurt unless she has overheard me discussing with people what I am doing?

    I contacted Petits Filous but they havent responded to my email, I expect they thought I was a crazy women!!

    We definately need to see a specialist, we last saw the dietician in February 2011, she seemed happy that my daughter was only eating yogurts and biscuits, no further appointments were made. However today my daughter has only eaten about 5 rich tea biscuits and now she is even refusing to eat ones which are not ASDA brand...Cry

    I rang the GP This afternoon as she has developed ezcema on her face and has cracked lips which seems like her immune system is weakening due to 3 weeks of just biscuits?? He told me that is is not their expertise to treat anything this complex and I need to see a dietician which I know but I need to be referred. 

    I did get her to peel a banana with me and lick it which was a start this afternoon, we are going to try more playing with food this weekend.

    You have had such a fantastic result with your son and have given me some great ideas to try, especially the treat bag and picnic.

    Thanks so much for your help Smile

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