In shock at new diagnosis. How did you all feel?

Long story short my son has had noticable problems since he started nursery at the age of 2 cut to now hes just turned 5 and i was told by his consultant he would see him once more after he turned 5 and then take him to the panel. So yesterday we went to this app which was meant to be the last before panel and was floored to say the least when he just came out with diagnosis of asd. If im honest i think i am still in shock . I am gutted and ive cried and i worry that now hes got this label for life and thiers no more " he might grow out of it " . 

Im happy as i no we can reach out for support now with this im scared because qe have faught this battle on our own for so long to let new people in

 I dont really no where we go from here either  he gave me a number for a course n said he qould get intouch with certain people to get intouch with me but nothin spercific as such then said he would be discharging him as his only job was to diagnose him.   

Where do we go from here ?what happens. I heard every autistic child should have a keyworker is this correct . If so from where and what do they do ? Im so confussed right now if im honest im finding it hard to process. Weve known for a while but having it in black and white is hard to see. I love him god i love him so much and wouldnt change him for the world i gyess im after advise to see what others did after diagnosis. Will it help or isit allways going to be a battle 

Parents
  • Hi,

    Take some time to adjust to the diagnosis, don't be upset your son is the same loving little boy he was before diagnosis, as for help you could try the services directory on this site that will give you an indication of what is available in your area. 

    You said that your son is 5 that means he is at school make an appointment with the school senco to discuss the diagnosis they will have the information on the help they can give and obtain for him in school 

    Good luck with everything 

Reply
  • Hi,

    Take some time to adjust to the diagnosis, don't be upset your son is the same loving little boy he was before diagnosis, as for help you could try the services directory on this site that will give you an indication of what is available in your area. 

    You said that your son is 5 that means he is at school make an appointment with the school senco to discuss the diagnosis they will have the information on the help they can give and obtain for him in school 

    Good luck with everything 

Children
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