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Please help, what do I do now?

NAS39316
over 5 years ago

My daughter had her first appointment today, the doctor said that while there are many asd indicators the fact that she doesn’t show any at school and there are no communication issues means he won’t pursue a diagnosis now. He want to see how she copes with the transition into the juniors next year. 

Im at a complete loss, he seemed to have no awareness of masking, she has melt downs 3 sometimes 4 times a week at home that can last up to an hour. I’m struggling to cope, he just wants me to go on a parenting course and find ways to help her deal with anxiety. 

  • over 5 years ago in reply to Deleted user

    As referred to by Creek, you might want to have a look at this page https://www.autism.org.uk/about/diagnosis/children.aspx particularly the section on "if you don't agree with the diagnosis" (depending on whether it was your GP or the specialist that doesn't want to diagnose). For further advice, you may like to contact our Autism Helpline team. They can provide you with information and advice. You can call them on 0808 800 4104 (Monday to Thursday 10am to 4pm, Friday 9am to 3pm). Please note that the Helpline is experiencing a high volume of calls and it may take a couple of attempts before you get through to speak to an advisor.

    Kind regards,

    Heather - Mod 



  • over 5 years ago

    This is similar to my experience we were rejected by the child development centre as she shows no communication issues (despite school saying that they are limited ) 

    I got the school nursing team involved they were as frustrated by the rejection as me and are helping with anxiety work in school as well as getting us a family support worker (not something that I wanted)  but it all builds evidence to support referral they advised me to keep behaviour logs and sleep journals they also liase with the school and I'm lucky in that they understand girls are good at masking and that it means she is different at home. It is frustrating as my daughter is nearly 8 and I have been asking for help since she was 3. 

    My advice is talk to your school senco and ask for the school nursing team to come and see her they can push for diagnosis and help with support and sometimes practical support in school 

    You are not alone trust your instincts if you think she needs assessment keep on at them 

  • over 5 years ago

    Seek a second opinion! Look on the NAS website it is a great resource for situations like this.