Forseeable difficulties in claiming benefits for adult son

I am worried about my son's ongoing ESA claim as, for around 2 years now, he has refused to engage with services which means, of course, that there are no appointments, treatments or medications we can refer to, nor any clinic or professional opinion we can include.  In short, no corroborative evidence.  It is only a matter of time before the dreaded ESA questionnaire lands, in order to update the information that was very well supported for the original claim (crisis team, early intervention in psychosis team, GP and CPN). 

Our son (23) is extremely withdrawn, mucky, possibly depressed and very hard to engage in any conversation.  In spite of having been discharged from the early intervention team because they diagnosed him with Asperger's and said they could find no evidence of mental illness, our son insists that he doesn't have autism and wants to be left to sort out his own problems in his own way.  This he does by avoiding everyone and he seems to find it almost painful to talk to us.  Or indeed anyone.  He has no friends or interests outside the home and, although we try to be supportive in a person-centred way, it's hard to know what we can do to help.  

How might we encourage engagement?  And how on earth can we protect his interests financially?  

Parents
  • I don't know if this is useful to you but I learned that when your appointment letter arrives a letter from a friendly GP will delay your interview by three weeks or so. So that gives you a bit more time to get organized. It only works once though. You need to phone up to find out where the doctors letter should be sent. It will be different from the address on your appointment letter. Also your son is probably entitled to a free taxi ride (arranged by the health assessment office) to and from the interview. They prefer people not to know about that.

    Best wishes.

  • Many thanks.  Good to know.  I think it would be all very much down to what I could do.  There is also the likelihood that our son will refuse to attend at all.  He basically wants nothing to do with the external world, very little to do with us as parents and to remain in his own room, using the computer as a distraction from all of his issues.  Our GP is aware of this but I 'm not sure what she would be prepared to do unless my son himself specifically asked.  Last time around we had a letter from his CPN (with whom he obviously refused to engage) but now nobody outside the family  actually sees our son and I'm guessing that, without seeing him the might very well feel it's be unprofessional to write a supporting letter.

Reply
  • Many thanks.  Good to know.  I think it would be all very much down to what I could do.  There is also the likelihood that our son will refuse to attend at all.  He basically wants nothing to do with the external world, very little to do with us as parents and to remain in his own room, using the computer as a distraction from all of his issues.  Our GP is aware of this but I 'm not sure what she would be prepared to do unless my son himself specifically asked.  Last time around we had a letter from his CPN (with whom he obviously refused to engage) but now nobody outside the family  actually sees our son and I'm guessing that, without seeing him the might very well feel it's be unprofessional to write a supporting letter.

Children
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