Skip to main content
Close Button
Donate
  • Replies 13 replies
  • Subscribers 85 subscribers
  • Views 5630 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

NHS treatment

NAS36646
over 6 years ago

I was wondering if it is all about my bad luck or it is just reality. My son is 4 years old and has been diagnosed with ASD. He has sensory processing difficulties too. I remember that after a diagnosis what we received was a leaflet with information about the disability and nothing else. Luckily we have S&L therapy sessions but it is every three months?! Today I read that: "Experts believe that the first 5 years of the
child's life are the most crucial and that is why
intensive help before school is important,
although intervention at any age is beneficial.". My question is: who is responsible for that intervention in this country? Rich parents who can afford private treatment? I fight for better life for my child and NHS specialists say that they cannot help me because of long cues or lack of government funding.. Does it mean that this country leaves us with no choice? I am so disappointed and do not know what to think about it whether it is a problem that we are not British or it is the same for everybody living here in the UK. Maybe I am wrong, but I feel that you fed up with immigrants and it is understandable. On the other hand everyone should be treated equally because it is not our fault that our child experiences such difficulties. Every parent wants to have beautiful, healthy children.. 

Parents
  • over 6 years ago

    Hi,

    I have a 3 yr old diagnosed with Autism. I am English. I had to wait around 7 months to have my son assessed to get a formal diagnosis and the same time to receive 6, 30min speech and language sessions. The sessions were useless and my son did not improve at all. I'm now back on the waiting list to receive another block of 6 sessions. This is all I have been offered, except for the warning that if my son doesn't talk before he is around 6 he probably never will. What I'm trying to say is that its not because you are an immigrant that the NHS is terrible. Its because it is on its knees and unless you are in a&e it is useless.

    I have tried to teach myself to be an Occupational therapist, speech and language therapist, ABA therapist, through the internet, especially youtube.

    Good luck with your journey.

  • over 6 years ago in reply to AliceS
    AliceS said:
    if my son doesn't talk before he is around 6 he probably never will

    Doesn't sound helpful, and probably not true, having heard from people who were mute as children. Have you come across PACT and shared attention at all? I know little about it, but the focus seems to be on parents following their child's interest rather than insisting on a particular type of engagement.

    Obviously the NHS needs more resources, and in autism particularly.

Reply
  • over 6 years ago in reply to AliceS
    AliceS said:
    if my son doesn't talk before he is around 6 he probably never will

    Doesn't sound helpful, and probably not true, having heard from people who were mute as children. Have you come across PACT and shared attention at all? I know little about it, but the focus seems to be on parents following their child's interest rather than insisting on a particular type of engagement.

    Obviously the NHS needs more resources, and in autism particularly.

Children
No Data