Had the most God awful day today

Can't quite get my head around the advice I was given today.

My son has Autism, wants to work, but no one will employ him because of his ASD and SEVERE DYSLEXIA. Can't work without significant support, which we are endeavoring to provide him ourselves because ATW have no clue about Autism and say they can't help him. 

Yet Citizens advice advised that he should give up self-employed supported work; with a note from his GP to say he's not able to work unsupported, because DWP have messed up our notification of 'change of circumstance'!!!!!!!!!

Their is absolutely no way I'm asking my son to give up his 'Reason for living and only opportunity to contribute to society', just to appease the DWP!

What do these people want???????

Branded scroungers and lazy if you claim 'unfit for work' and advised to give up work if you have the desire, but no independent help or support; beyond your own family.

I've also been advise to attend court by CAB. When i tried to explain to CAB that as a carer of two on the spectrum, I have enough to contend with without having to go to court, he said he had no clue about ASD, but I should attend anyway!!!!! Really???????

How is this equality for those with disabilities??????

So B----y angry!!!!!

Sorry for the rant, but i'm at the end of my tether.......Teenager sobbing inconsolably and disillusioned with a world filled with ignorance. The other in tears over an accident he's had. A disaster of a day

Is this really the message we want our youth to embrace?

Guess we are off to court to contest this. What a waste of money and a demoralizing time all round. Haven't people with ASD got enough to contend with????

God what a dreadful day.:(

Parents
  • What was said in court by the council representative (That the extended entitlement to another benefit would aftect my entitlement to CT.) doesn't now seem to be the case, I'm told.

    Spoke to some one from the council yesterday, who now says we are not entitled to support, despite our low income. How could this be? Given the misinformation I've been given on a fairly constant basis so far from HMRC and DWP, I'm not sure where I stand now!

    To have HMRC admit they misadvised me this time, (Only after they said their was no record of my call) is something at least, but where does that leave the claimant? In debt for something they were advised they were entittled to!

    Do these advisors have any clue of the wake of devastation they leave for people with Autism or learning difficulties?

    If I struggle, How would my sons who are way more severe manage?

    I feel vindicated in one sense and yet devistated in the other.

    I'm not sure I trust anything anyone official says now. You try to do everything right and it's still wrong. How do you negociate such misinformation without coming undone?

    Feeling very Lost.

Reply
  • What was said in court by the council representative (That the extended entitlement to another benefit would aftect my entitlement to CT.) doesn't now seem to be the case, I'm told.

    Spoke to some one from the council yesterday, who now says we are not entitled to support, despite our low income. How could this be? Given the misinformation I've been given on a fairly constant basis so far from HMRC and DWP, I'm not sure where I stand now!

    To have HMRC admit they misadvised me this time, (Only after they said their was no record of my call) is something at least, but where does that leave the claimant? In debt for something they were advised they were entittled to!

    Do these advisors have any clue of the wake of devastation they leave for people with Autism or learning difficulties?

    If I struggle, How would my sons who are way more severe manage?

    I feel vindicated in one sense and yet devistated in the other.

    I'm not sure I trust anything anyone official says now. You try to do everything right and it's still wrong. How do you negociate such misinformation without coming undone?

    Feeling very Lost.

Children
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