Had the most God awful day today

Can't quite get my head around the advice I was given today.

My son has Autism, wants to work, but no one will employ him because of his ASD and SEVERE DYSLEXIA. Can't work without significant support, which we are endeavoring to provide him ourselves because ATW have no clue about Autism and say they can't help him. 

Yet Citizens advice advised that he should give up self-employed supported work; with a note from his GP to say he's not able to work unsupported, because DWP have messed up our notification of 'change of circumstance'!!!!!!!!!

Their is absolutely no way I'm asking my son to give up his 'Reason for living and only opportunity to contribute to society', just to appease the DWP!

What do these people want???????

Branded scroungers and lazy if you claim 'unfit for work' and advised to give up work if you have the desire, but no independent help or support; beyond your own family.

I've also been advise to attend court by CAB. When i tried to explain to CAB that as a carer of two on the spectrum, I have enough to contend with without having to go to court, he said he had no clue about ASD, but I should attend anyway!!!!! Really???????

How is this equality for those with disabilities??????

So B----y angry!!!!!

Sorry for the rant, but i'm at the end of my tether.......Teenager sobbing inconsolably and disillusioned with a world filled with ignorance. The other in tears over an accident he's had. A disaster of a day

Is this really the message we want our youth to embrace?

Guess we are off to court to contest this. What a waste of money and a demoralizing time all round. Haven't people with ASD got enough to contend with????

God what a dreadful day.:(

Parents
  • Hi Coogy

    I am in a bit of a rush to get out so I will write as much as I can.

    I had to apply to the Tribunal Service and down loaded it all off the internet - http://www.tribunals.gov.uk/

    I appealed against the DWP back in Jan and they refused it - I got hold of the line manager at DWP and asked for his explanation for their decision but he said I hadn't made things obvious enough about the severity of the situation! I was livid of course but was then forced/humiliated to continue the appeal - filled in more forms but this time went to the CAB - I really don't think they have a lot of experience with our problems so I have had three lengthy meetings which took time and energy (which we don't have). I have since found that our local authority run Carer's Group gets help from a local solicitor who gives her time free to help guys like us- could you ring round a few solicitors in your area! This all takes time and it stinks!

    Another option is your MP which we nearly resorted to and still may need! The DWP just don't understand the problems faced - a sketch from 'Little Britain' comes to mind... "Computer says NO!" Could the NAS give you some guidance too - I am really clutching at straws! My daughter's case was re Carer's Allowance and getting across her problems so a little different from your son's but I can see that the DWP haven't a clue regarding our kid's need for independence/support.

    Sorry if I haven't been too helpful - Longman/Sox will hopefully come along with some great ideas.

    X

Reply
  • Hi Coogy

    I am in a bit of a rush to get out so I will write as much as I can.

    I had to apply to the Tribunal Service and down loaded it all off the internet - http://www.tribunals.gov.uk/

    I appealed against the DWP back in Jan and they refused it - I got hold of the line manager at DWP and asked for his explanation for their decision but he said I hadn't made things obvious enough about the severity of the situation! I was livid of course but was then forced/humiliated to continue the appeal - filled in more forms but this time went to the CAB - I really don't think they have a lot of experience with our problems so I have had three lengthy meetings which took time and energy (which we don't have). I have since found that our local authority run Carer's Group gets help from a local solicitor who gives her time free to help guys like us- could you ring round a few solicitors in your area! This all takes time and it stinks!

    Another option is your MP which we nearly resorted to and still may need! The DWP just don't understand the problems faced - a sketch from 'Little Britain' comes to mind... "Computer says NO!" Could the NAS give you some guidance too - I am really clutching at straws! My daughter's case was re Carer's Allowance and getting across her problems so a little different from your son's but I can see that the DWP haven't a clue regarding our kid's need for independence/support.

    Sorry if I haven't been too helpful - Longman/Sox will hopefully come along with some great ideas.

    X

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