Had the most God awful day today

Can't quite get my head around the advice I was given today.

My son has Autism, wants to work, but no one will employ him because of his ASD and SEVERE DYSLEXIA. Can't work without significant support, which we are endeavoring to provide him ourselves because ATW have no clue about Autism and say they can't help him. 

Yet Citizens advice advised that he should give up self-employed supported work; with a note from his GP to say he's not able to work unsupported, because DWP have messed up our notification of 'change of circumstance'!!!!!!!!!

Their is absolutely no way I'm asking my son to give up his 'Reason for living and only opportunity to contribute to society', just to appease the DWP!

What do these people want???????

Branded scroungers and lazy if you claim 'unfit for work' and advised to give up work if you have the desire, but no independent help or support; beyond your own family.

I've also been advise to attend court by CAB. When i tried to explain to CAB that as a carer of two on the spectrum, I have enough to contend with without having to go to court, he said he had no clue about ASD, but I should attend anyway!!!!! Really???????

How is this equality for those with disabilities??????

So B----y angry!!!!!

Sorry for the rant, but i'm at the end of my tether.......Teenager sobbing inconsolably and disillusioned with a world filled with ignorance. The other in tears over an accident he's had. A disaster of a day

Is this really the message we want our youth to embrace?

Guess we are off to court to contest this. What a waste of money and a demoralizing time all round. Haven't people with ASD got enough to contend with????

God what a dreadful day.:(

Parents
  • Hi Coogy!

    Sorry you have had a horrid ( I could use some other descriptive word but I daren't!) day - it just is so unfair that guys like us are the ones who suffer and I think between us are probably educating the ignorants at DWP (oops, did I say that?!!!).

    I am waiting to go to appeal at tribunal too and not just for the money I think my daughter deserves/needs, but to have my half hour in court to 'inform' judge and jury about the world of autism - it has left me tired and emotional and not something I feel I can talk to my friends about as they won't 'get' it.

    Get some rest , put today to one side and take a deep breath. I know you have fought for years for your sons and you are a credit to them/yourself and an inspiration to the rest of us who struggle along. If we all keep 'chipping away' at the DWP, Sencos, Paeds, MP's etc then one day we will get justice. 

    I told the guys at the Tribunal Service that I couldn't make mornings or Friday pm's for my tribunal as I would be too busy/ burned out by the end of the week - felt so much better - but I bet all these 'clerks to the Judge' haven't a clue. The C.A.B. have been great help,but I've had to make sure my rep. has done her research/homework in order to really represent me.

    Big hugs - you are doing great, but look after No.1!

    X

Reply
  • Hi Coogy!

    Sorry you have had a horrid ( I could use some other descriptive word but I daren't!) day - it just is so unfair that guys like us are the ones who suffer and I think between us are probably educating the ignorants at DWP (oops, did I say that?!!!).

    I am waiting to go to appeal at tribunal too and not just for the money I think my daughter deserves/needs, but to have my half hour in court to 'inform' judge and jury about the world of autism - it has left me tired and emotional and not something I feel I can talk to my friends about as they won't 'get' it.

    Get some rest , put today to one side and take a deep breath. I know you have fought for years for your sons and you are a credit to them/yourself and an inspiration to the rest of us who struggle along. If we all keep 'chipping away' at the DWP, Sencos, Paeds, MP's etc then one day we will get justice. 

    I told the guys at the Tribunal Service that I couldn't make mornings or Friday pm's for my tribunal as I would be too busy/ burned out by the end of the week - felt so much better - but I bet all these 'clerks to the Judge' haven't a clue. The C.A.B. have been great help,but I've had to make sure my rep. has done her research/homework in order to really represent me.

    Big hugs - you are doing great, but look after No.1!

    X

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