Questions

Hi, 

I got diagnosed with autism last year, at the age of 21, due to a joke which then turned quite real. Even though I had a good therapist, I was left with too many questions to answer. 

I tried to find answers in articles online or in books but the situations were all different, they all had family which understood and was supportive. 

I wonder, why autism never gets discussed in my family. The only thing I heard was that I don’t seem like the typical autistic person and that it doesn’t make sense to them that I was diagnosed to begin with and if anyone else has these issues. 

I wonder if anyone else’s problems just get downplayed by other people when they try to open up. Every time I say that I have autism people react with the same sentence “is it diagnosed then?” 
this reaction just blows my mind. 
I wonder why I never seem to fit in anywhere, even if I try so hard. I don’t even feel like I’m a past if my own family anymore. There is nothing that connects me to my parents an when I visit them, there is nothing we talk about.
My masking also doesn’t work very well anymore. Did anyone else experience their masking abilities to just disappear or weaken? 

There are so many more questions I have but I have no one who can help me with that. I’d love to have a few people to talk to (: 

So I don’t really know where I was going with this, maybe just letting off some steam?
If you wanna say something then you are welcome to do so (: 

It’s my first time in a forum so please don’t be too harsch on me! 

Parents
  • May I ask, how did it come about that you thought you needed a diagnosis of autism?

  • Hi, thanks for the responses (: 

    my family used to bully me as well especially my brother 

    he’d do everything to get me to have a meltdown and when it happened I got yelled at by my parents an told that I should just ignore him. 

    people are awful and I know that they do awful things to others especially people who are different so I’d actually believe you I think 

    I live in the Netherlands and Dutch profanity is literally filled with diseases like cancer among others. Here, everyone who places their things neat and tidy on the desk etc is told that they have autism (that’s Dutch people joking) I never understood that. So one evening  my boyfriend and I for “fun“ did these online tests. First really dumb ones and eventually ones that would determine if you have autism or not. I scored 89% on the first test. My first thought was “this must be wrong, it’s just a stupid test” but I ended up doing all of them and with every test I scored around 90%. We went to bed and I couldn’t sleep because if this  so I took multiple paid tests which also turned out to be around 90%. So that’s when I decided to actually get myself testet and it turned out that I indeed have ASD

Reply
  • Hi, thanks for the responses (: 

    my family used to bully me as well especially my brother 

    he’d do everything to get me to have a meltdown and when it happened I got yelled at by my parents an told that I should just ignore him. 

    people are awful and I know that they do awful things to others especially people who are different so I’d actually believe you I think 

    I live in the Netherlands and Dutch profanity is literally filled with diseases like cancer among others. Here, everyone who places their things neat and tidy on the desk etc is told that they have autism (that’s Dutch people joking) I never understood that. So one evening  my boyfriend and I for “fun“ did these online tests. First really dumb ones and eventually ones that would determine if you have autism or not. I scored 89% on the first test. My first thought was “this must be wrong, it’s just a stupid test” but I ended up doing all of them and with every test I scored around 90%. We went to bed and I couldn’t sleep because if this  so I took multiple paid tests which also turned out to be around 90%. So that’s when I decided to actually get myself testet and it turned out that I indeed have ASD

Children
  • that what happened to me i was bored and did a test  online  got a postive ASC result ! so I did a different one again Positive for ASC....   9 months later i have been diagnosed as on the spectrum !  and still find it hard to believe. I thought they where going to say go away u're normal stop wasting our time !   But it has explained so much about me !  I feel so much more at ease with myself now Grinning aint life funny Grinning