Autistic girl dragged from home for unknown Food Sensitivities

JuniperFromGallifrey said:

Please be mindful when talking with "health" professionals who might not have bothered to stay up on the medical science around the different biology linked with Autism.

I think a bit of common sense is needed here - those professionals often have a workload far in excess of most of us and are making life affecting decisions on an hourly basis.

To expect them to keep up to date on just one small area around a condition affecting a small minority of people (approx 2% of people are autistic and only some will have the issues here) is more than a little unreasonable.

What would be useful is if an organisation like NAS could advocate to the NHS to have neurodivergent training created for the NHS and for groups where we attend to have a minumum number of people trained on this with an annual refresher.

JuniperFromGallifrey said:

I am trying to appeal to universities and charities. We need the NHS FULLY updated on the bio-science of Autism

Could you share what hard proof the research in this area has produced please? It would be useful to see the peer-reviewed articles that will be taken seriously by the medical community. Most of what I have read so far has only resulted in indications or is not peer reviewed so I would like to update my own knowledge.

I'm not asking for anything unreasonable! If anything I'm putting this out there for those who don't know what to expect. 

There's a difference between demanding ethics and expecting medical professionals to use a bit of sensibility rather than presuming and actually doing harm - which there is an account of in this case. 

Fiona said:

they are looking at her behaviour through a neurotypical lens and coming up with the wrong conclusion.

So, while I can understand that there might not be an 'overt discrimination', there is also a difference between a professional who should know how to begin to ask the right questions and one who cannot see the nuances of difference, even being informed of hyper mobility, who and not only physically harms the patient but also lacks the maturity to afford dignity and act professionally. The accounts of are "carers" who lack any compassion, who abuse, disrespect and use derogatory language toward a young girl. I don't think this should be allowed in health care at any level. That can't be unreasonable to expect. 

Once we can properly assess where the lines of safety exist, then we know what to expect even if it's not ideal or the system is complicating a thing to the degree that being overworked prohibits reasonable and responsible care. I've experienced first hand the lack of basic knowledge on things - such as air pressure and blood pressure and sharp changes equating to more arrivals at A&E. I rarely encounter anyone working in medicine with the generational knowledge my grandparents or even, deep sea divers might have on the matter.  These things cannot be estranged, but they are. Caution, therefore is required. 

I'm not asking for anything unreasonable! If anything I'm putting this out there for those who don't know what to expect. 

There's a difference between demanding ethics and expecting medical professionals to use a bit of sensibility rather than presuming and actually doing harm - which there is an account of in this case. 

Fiona said:

they are looking at her behaviour through a neurotypical lens and coming up with the wrong conclusion.

So, while I can understand that there might not be an 'overt discrimination', there is also a difference between a professional who should know how to begin to ask the right questions and one who cannot see the nuances of difference, even being informed of hyper mobility, who and not only physically harms the patient but also lacks the maturity to afford dignity and act professionally. The accounts of are "carers" who lack any compassion, who abuse, disrespect and use derogatory language toward a young girl. I don't think this should be allowed in health care at any level. That can't be unreasonable to expect. 

Once we can properly assess where the lines of safety exist, then we know what to expect even if it's not ideal or the system is complicating a thing to the degree that being overworked prohibits reasonable and responsible care. I've experienced first hand the lack of basic knowledge on things - such as air pressure and blood pressure and sharp changes equating to more arrivals at A&E. I rarely encounter anyone working in medicine with the generational knowledge my grandparents or even, deep sea divers might have on the matter.  These things cannot be estranged, but they are. Caution, therefore is required.