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Hi I think I have Asperger's syndrome.

NAS24799
over 7 years ago

Hi,

My name is Gary and I am 45 years old. About 18 months ago I had a pericarditis or an infection of the heart lining. It was caused by over-work and stress in my opinion. Then September last year, it was suggested to me from 3 different people which was a bit weird that I had Aspergers symdrome. I took a few online test and scored quite highly and it did tick a lot of boxes to problems and successes I have had in my life. Especially the obsessive nature I have with very specific topics. I went to doctors, didn't bring up the AS but the problems I was having. She got me to fill in a few tests and I scored high on the AS test again. I was referred but since that time I have had no word. My doctor is looking into it.

At the moment I feel a bit lost with it all, apart of me says just forget it as I have lived with this for quite a long time and in life I think I am doing ok. Equally, however in other parts of my life I doing quite badly, so that part of me wants to find out more. Figure out the rules and structures, so I can figure this all out. But since knowing I have noticed I get a lot of panic attacks and at times I can make them worse by obsessively doing things I know will bring them on. Sort of a shout for help but being a rather private people I end up masking it all. So it worries me that I could go down the same route I did 18 months ago and it seriously affecting my health.

The main reason I want to find out more is that I am now married with two children (Megan (7) and Rebecca (3)). Now Megan is showing signs but we are not sure, so taking a step at the time. It does worry me, how I can be at times and then looking after my children. I generally keep a handle on it as the priority of looking after them keeps me on track. I still worry I might slip.

So here I am looking for a bit of advice. Of what to do next? 

Hope this makes some sort of sense.

Many thanks in advice for any help.

Regards

Gary

Parents
  • over 7 years ago

    Hi Gary and welcome, 

    Hopefully you will find some useful information in replies from other community users here.  If you have further questions about potential diagnosis for you or your daughter, you might like to look at the pages on the NAS website relating to those areas:

    This section provides further information on getting a childhood diagnosis:
    http://www.autism.org.uk/about/diagnosis/children.aspx

    This link gives further information about adult diagnosis and its benefits:

    http://www.autism.org.uk/about/diagnosis.aspx

    If you are struggling to get referral from your GP, you may be interested to know the Autism Act 2009 was the first ever disability specific law in England.  The act led to the government producing the Autism Strategy.  As part of this strategy, it was recommended that local areas appoint a lead professional to develop diagnostic and assessment services for adults with autism. One of the guidelines is that local authorities must have a clear pathway of diagnosis for adults.  This means that wherever you live, you should be able to access a diagnostic assessment and your GP and/or local authority should be able to tell you how you can access this assessment:  http://www.autism.org.uk/working-with/autism-strategy/diagnosis/find-your-local-diagnostic-leads.aspx  

    If you have any further questions, please do post back and a moderator or community member will try to help.

    Kind regards,

    Heather - Mod

Reply
  • over 7 years ago

    Hi Gary and welcome, 

    Hopefully you will find some useful information in replies from other community users here.  If you have further questions about potential diagnosis for you or your daughter, you might like to look at the pages on the NAS website relating to those areas:

    This section provides further information on getting a childhood diagnosis:
    http://www.autism.org.uk/about/diagnosis/children.aspx

    This link gives further information about adult diagnosis and its benefits:

    http://www.autism.org.uk/about/diagnosis.aspx

    If you are struggling to get referral from your GP, you may be interested to know the Autism Act 2009 was the first ever disability specific law in England.  The act led to the government producing the Autism Strategy.  As part of this strategy, it was recommended that local areas appoint a lead professional to develop diagnostic and assessment services for adults with autism. One of the guidelines is that local authorities must have a clear pathway of diagnosis for adults.  This means that wherever you live, you should be able to access a diagnostic assessment and your GP and/or local authority should be able to tell you how you can access this assessment:  http://www.autism.org.uk/working-with/autism-strategy/diagnosis/find-your-local-diagnostic-leads.aspx  

    If you have any further questions, please do post back and a moderator or community member will try to help.

    Kind regards,

    Heather - Mod

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