Daughter just diagnosed at 16 really need some help!

Hello everyone, thank you for taking the time to read my post I will be very grateful if you could help us in anyway at all!

My daughter has had a hard life since birth and myself and partner knew something was not right with her! Even more so after having 3more children. However we never got the help we should had and if I was to go into everything I think you would give up reading my post! 

To cut a long story short my daughter is almost 16 she has been under CAMHS for 10years (unhelpful) they have been! She would not go to school and we was taking to court! Our solicitor had a doctor come do assessment's on her and finally after months of tests and assessment and years of hard work raising her we are told she has Asperger's

We really are at our wits end and so so worried about her we love her with all our heart and can not see her like this no more! She don't leave her room she has very bad anxiety and depression disorder she will not socialize at all!! The doctor who diagnosed her was absolutely amazing and said she feels for our daughter deeply she said she tells parents with children the age of 5 we need to do something now before they end up like this! She said the this is our daughter (not in a mean way) she says the system let our daughter down!

The reason we come to you for help is we don't know where to turn or much about Asperger's, CAMHS are no help at all and I don't know what help is available for her. Can you help us with any advice such as sites we can visit help we can access things she maybe entitled to? Any help will be greatly appreciated. I apologize for such a long post and if you have made it to the end I thank you so much for your time and any advice you can offer us. Thank you 

Parents
  • Well,... You are on the right website. 

    From an aspergers point of view....

    As for not going to school.  School is a nightmare full of kids behaving in a way that doesn't make sense.

    Not socialising.  Don't know how to socialise or why????

  • Thank you for your reply, she has anxiety disorder and that stops her from socialising in a big way. I think you are also right and she is unsure how to socialise. Is there anything I can do to help her? We have not been offered any help as of yet and I am unsure where to start. Thank you

  • The way I would explain it.  And not just to your daughter, but to autistics in general.  Is that in life we all have dreams and goals.  But we cannot achieve these goals alone. So we need to get along with other people to get  help and support.   And this requires basic social and communication skills.

    These skills can be either picked up by observing other people or by being explicitly taught.

  • Thank you very much for your help and advice Robert, I appreciate it greatly

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