Devastated by my daughter's diagnosis

Hello, I'm new to the forum...I've just got nowhere else to turn. My 9-year-old daughter was diagnosed on Tuesday by CAMHS. To say that I am devastated is an understatement. I feel embarrassed. I have tried over the years to encourage her to go to parties and be social, to take pride in her appearance and play nicely, but she crumbles in social situations, which has been very difficult for us as a family. I do not want her to be an autistic person. I just want my daughter to be like other children...the thought that she is different makes me shudder.

I'm sorry; I was planning to say far more but I just can't.

When you plan a baby this isn't what you expect, is it?

Parents
  • Ferret, I think you are being much too hard on this lady. I think you need to show some more compassion. She has just had some overwhelming news; she's bound to be upset, for her daughter and for herself and the rest of her family. Calling people "abusive" is unfair. How can you judge somebody's parenting abilities from a couple of brief (and understandably quite emotional) posts on a forum???

    Can'tBelieveIAmHere...I understand how you feel. I was diagnosed Asperger's over four years ago and I still find myself mourning the life I will never have. It does feel like a curse, if I'm honest, but there are still things I can do, such as my writing and my more occasional singing. I know other people on the spectrum who have good jobs, partners and friends and families, and happy, fulfilling lives. I'm sure your daughter has her own skills; if you encourage these, then this will boost her confidence and help with her socialising. I am with you that socialising is important...at the end of the day, we all have to do it, autistic or not, and whether we want to or not. Obviously you have to know when you're pushing too hard...now you've got the diagnosis, you might be able to achieve some balance here.

    I have no doubt that you love your little girl for who she is. It sounds like you're just reeling with the shock of it all at the moment, and that's OK. Please don't be put off by harsh reactions of other posters...we are here for you.

Reply
  • Ferret, I think you are being much too hard on this lady. I think you need to show some more compassion. She has just had some overwhelming news; she's bound to be upset, for her daughter and for herself and the rest of her family. Calling people "abusive" is unfair. How can you judge somebody's parenting abilities from a couple of brief (and understandably quite emotional) posts on a forum???

    Can'tBelieveIAmHere...I understand how you feel. I was diagnosed Asperger's over four years ago and I still find myself mourning the life I will never have. It does feel like a curse, if I'm honest, but there are still things I can do, such as my writing and my more occasional singing. I know other people on the spectrum who have good jobs, partners and friends and families, and happy, fulfilling lives. I'm sure your daughter has her own skills; if you encourage these, then this will boost her confidence and help with her socialising. I am with you that socialising is important...at the end of the day, we all have to do it, autistic or not, and whether we want to or not. Obviously you have to know when you're pushing too hard...now you've got the diagnosis, you might be able to achieve some balance here.

    I have no doubt that you love your little girl for who she is. It sounds like you're just reeling with the shock of it all at the moment, and that's OK. Please don't be put off by harsh reactions of other posters...we are here for you.

Children
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