Dealing with family

Hello all,

I'm new here. I've never been on any forum so god knows if this'll work!!

I have a seven year old who has just been diagnosed as having ASD. We live in France but information is not as available there as it is in the UK and I don't ave any parents yet in my situation with whom I can chat.

I am visiting my family in the UK and my son has had a couple of outbursts in front of them. It's the first time they've seen him since he was diagnosed and bizarrely his differences are more obvious than they were before.Perhaps it's his age..now things just ARE more obvious.

He has just seen two of his cousins of 3 years old and of 15 months. I have been teaching him to ask for help immediately when he feels he will not be able to control his hands and feet but twice he has not and has pushed the children over. This has been so humiliating and sad for all those involved, him of course included. He will say "I didn't do it on purpose" which I believe because I know he was simply trying to remove an annoyance but with a lack of thought. Still, obviously we had to tell him off which we did. My sister then said "Will he learn from his punishment"? then later: "Do you think that's his autism"? I asked her if she had read any of my mails for the last month! I feel frustrated that people are not able to understand that he won't learn from a punishment in the way his brother would (who is "neurotypical"), that we will always be referees to a certain extent, that we need their help and that we aso need patience, understanding and time. I feel very sad as I know he is being judged and I feel there's not a huge amount of compassion for us as parents. I had to remind my Dad that standing watching my son fight with a baby and drinking tea was not at all constructive, nor was relating it to my sister when I'd solved the issue and all was finally okay.

I don't really know what I'm trying to say. I feel mortified even though it's not my fault, I feel really sad for my son and sorry for my sweet nephew that got pushed...

I feel that however I explain what we are all tackling that the disability factor is not at all understood and that everything that is wonderful about my son is missed. I always apologize for his behaviour but I'd love someone to once ask me what it is like living with him, what it's like for HIM, what they can do to help...etc. I've always looked out for other children, nephews, friends' children... I hoped that they would look out for mine too but I feel quite isolated. I overheard my Dad telling my sister with great drama what my son had done to her baby and I felt furious because he is incapable of seeing beyond the symptoms. Is that what people tend to do? How do you get over the disappointment of that, the sadness for your son...? I thought that in asking them to intervene if I was not in the room would be enough for them to realize the extent of our difficulties but they don't seem to have taken it on board and I then feel very annoyed if my son is struggling and nobody comes to his aid when he ASKS! You then end up with two casualties, the child who has borne the brunt of the frustration and the child who looked for help from an adult that didn't come to his aid.

Thank you for ANY help, any insight... It's all VERY new...

Parents
  • Thank you for the link Martian Tom. That is so thoughtless the biscuit business. It would have hurt nobody to give her one and it would have changed everything for her. You understand...thank you. I am so sorry that you are having to deal with the thoughtless people. You sound so kind. I told my son that there are only differences. I think people can not understand what it is to be non-neurotypical unless it truly enters their sphere. I feel so sorry for the girl at work that you described. It seems to me cruel. I would prefer to believe that it was ignorance because then at least there is hope!

    It is just sad as there is such beauty in the non-neurotypical. Compassion is everything.

Reply
  • Thank you for the link Martian Tom. That is so thoughtless the biscuit business. It would have hurt nobody to give her one and it would have changed everything for her. You understand...thank you. I am so sorry that you are having to deal with the thoughtless people. You sound so kind. I told my son that there are only differences. I think people can not understand what it is to be non-neurotypical unless it truly enters their sphere. I feel so sorry for the girl at work that you described. It seems to me cruel. I would prefer to believe that it was ignorance because then at least there is hope!

    It is just sad as there is such beauty in the non-neurotypical. Compassion is everything.

Children
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