My daughter has been diagnosed this week with Aspergers.

Hi, I'm a mom to 3 children, my nearly 15 yr old daughter is the middle child and has been diagnosed with Aspergers this week. She was diagnosed with epilepsy at 2yrs old, but from around then I noticed she was 'struggling' with things and has been tested for ADHD about 4 times over the last 12 yrs but was diagnosed at 4 with dyspraxia.

I haven't had any knowledge about Aspergers other than the 72 year old man with Aspergers and mild learning difficulties, who is the most lovely man who will always come up to you and say hi (no matter what you are doing).

I just feel lost and in the dark, saw CAMHS Wednesday and they said we are diagnosing her with Aspergers and that was about it. We have to take her this Wednesday so they can talk to her about what it is and means for her.

Parents
  • Hi, I am quite new here too and although I don't have a formal diagnosis yet I know several people who do and every one of them has said that it is better now that they know they aren't just 'weird' or 'have something wrong with them' it has a name and a set of difficulties that come with it but also has benefits. Now that you know, you can begin to learn about it, and your daughter is at an age where she will be able to learn coping strategies to deal with some of the things she finds difficult before having to navigate into adulthood in the dark.

    You said you feel lost and in the dark just now, I have often felt like that trying to pin down what made me feel so out of touch. What helped me a lot was to know that there is a difference in the way that Aspergers presents in males than it does in females. Until now it was very underdiagnosed until these differences were recognised, so many books onf the subject dealt solely with males. If you and your daughter would like to read more about it I can reccommend several books that I have found very helpful.

    * Aspergirls by Rudy Simone - very informative with a section in each chapter with advice for parents, and a section for daughters.
    * I am Aspienwoman but Tanya A Marshall - Lots of colourful photography and helpful comments from many different women with a variety of interests to show how diverse aand positive it can be.
    * Nerdy, Shy and Socially Inappropriate by Cynthia Kim - this one in particular has been so vastly helpful for me. It says on the cover "A user guide to an Asperger life" and it really does feel like a guide to living and navigating society. I highly reccommend this one to everyone because I connected so well to it.


    I hope some of this is helpful, just remember that neither of you are alone in this.

Reply
  • Hi, I am quite new here too and although I don't have a formal diagnosis yet I know several people who do and every one of them has said that it is better now that they know they aren't just 'weird' or 'have something wrong with them' it has a name and a set of difficulties that come with it but also has benefits. Now that you know, you can begin to learn about it, and your daughter is at an age where she will be able to learn coping strategies to deal with some of the things she finds difficult before having to navigate into adulthood in the dark.

    You said you feel lost and in the dark just now, I have often felt like that trying to pin down what made me feel so out of touch. What helped me a lot was to know that there is a difference in the way that Aspergers presents in males than it does in females. Until now it was very underdiagnosed until these differences were recognised, so many books onf the subject dealt solely with males. If you and your daughter would like to read more about it I can reccommend several books that I have found very helpful.

    * Aspergirls by Rudy Simone - very informative with a section in each chapter with advice for parents, and a section for daughters.
    * I am Aspienwoman but Tanya A Marshall - Lots of colourful photography and helpful comments from many different women with a variety of interests to show how diverse aand positive it can be.
    * Nerdy, Shy and Socially Inappropriate by Cynthia Kim - this one in particular has been so vastly helpful for me. It says on the cover "A user guide to an Asperger life" and it really does feel like a guide to living and navigating society. I highly reccommend this one to everyone because I connected so well to it.


    I hope some of this is helpful, just remember that neither of you are alone in this.

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