Asperger's confuses me.

I was diagnosed a few years ago and still find myself in a difficult position. My psychologists refused to label me as a child in the autism spectrum. Which could have made life a bit easier because help was available in school and college. I find myself questioning problems I have with communication and generalisation of behaviour that is different to mine. I haven't received any help because it's difficult to find it in my area. I just don't know what I need to establish a better understanding of my condition. I genuinely need some help or advice. Please. 

  • The same thing happened to me - when i was reffered with suicidal tendencies a few years ago they assumed because I was undiagnosed (and still am) that my family was using it as an excuse for my behaviours. My family now all realise that my behaviours are heavily related to Aspergers syndrome. 

    I don't blame the people in the mental health unit though. There were other problems that needed addressing, and they helped me through a tough time.

    I recommend you read the book Pretending To Be Normal, (I forget the name of the author), it explains alot. It was written by a woman who grew up with the condition, and includes coping strategies for exam students. It explores a lot of difficult subjects, such as the guilt of late diagnosis and can also be helpful for parents to read as well.

    My mum found it a huge eye opener when it came to unofficially diagnosing me (sort of just saying "oh, so thats what it is").

  • Thank you for welcoming me I have found this forum both insightful and helpful so far. I have genuinely found no help with medical services local to my area e.g. NHS. So this forum is ideal for me personally because I haven't really met many people with our condition. 

    I have been researching for different books helping areas of life practically however I wasn't able to find the right ones so thank you for the examples. I don't completely understand my traits because they are rather jumbled with negativity from public opinion however I have learned my straightforward talking, truth and loyalty have helped people. 

    I will check about the local groups. I'm not sure if my area will have the correct help however I will try. 

    Thank you again for your help and advice it's been more than helpful on my journey to understanding. Maybe I giggled a little bit about the 'Success as an introvert for dummies!' It's rather different you have to admit. 

  • Former Member
    Former Member

    Welcome to the forum, I hope you find us all warm, friendly and helpful. There is a lot to learn about our condition. The forum allows us to share and help each other with practical advice and encouragement.

    There are some very good books that give some really practical things that you can do to help you understand and deal with the condition. I've read "Living well on the spectrum" by Valerie Gaus and (don't laugh!) "Success as an introvert for Dummies". Both are packed with accessible and practical advice. There are other books listed elsewhere on this site that will be worth a look too. (Try your local library or browse in your local bookshop)

    I was diagnosed a couple of months ago. I have found the diagnosis really useful but it hasn't resulted in any help or cures from the health service or anything like that. This is a thing that can be tackled by accepting and understanding the diagnosis. The diagnosis shows that you are likely have particular strengths in addition to the problems. You are likely to be honest, diligent, careful, straightforward, plain speaking etc. These are all valuable traits that you can do something with.

    There are local groups in some areas. Look for details on the home page of this website - I haven't used these but you might find some help and understanding from members in your area.

    Otherwise, keep posting your puzzles and problems here in the community forum. Between us we have probably come across most of the problems you are likely to encounter. You can also go back through members posts to understand a lot about the issues that we have come up against and how we've dealt with them.