How do you deal with a late diagnosis?

Am I grieving?

Being diagnosed with autism at the age of 30 was a defining moment in my life, but not in the way some might expect. Instead of unlocking a world of understanding, it felt like I had uncovered a Pandora's box of lost opportunities, missed connections, and the harsh reality of a childhood and education that slipped through my fingers.

As I reflect on my life, I can't help but feel the weight of a lost childhood. The struggles that seemed insurmountable, the friendships that never formed, and the feeling of being on the outside looking in – these are the echoes of my early years. Autism wasn't a badge of honor; it was a veil that clouded my perception and left me isolated.

My educational journey was a rocky road paved with misunderstandings and unmet needs. The challenges I faced were not acknowledged or addressed appropriately. Instead of support, I received confusion and frustration. The diagnosis at 30 brought with it a bitter realization – the education system had failed me, leaving scars that time couldn't erase.

The response to my diagnosis surprised me. Instead of empathy, I encountered a barrage of well-intentioned but misguided narratives. Non-autistic people, perhaps seeking comfort in their own understanding, spread the nonsense that autism is not a disability but a superpower. It's as if they believe we should be grateful for a condition that, in my experience, has been more debilitating than empowering.

"Appreciate having autism; it's a gift," they say. But what about the struggles, the isolation, the daily battles with a world that I can't fit into? It's not a gift; it's a complex and challenging aspect of my identity. To dismiss the difficulties as mere negativity denies the reality of my experience.

The rhetoric surrounding autism sometimes takes on an exclusive club mentality. As if we should be honored to be part of some elite group. Terms like "aspie" are thrown around, treating us like cute, endearing pets. I am not a novelty. I am a person with real struggles, aspirations, and a desire for understanding.

Being diagnosed with autism at 30 was a revelation that forced me to confront my past and reimagine my future. It's not a superpower; it's not a gift. It's a part of me, with its own complexities and challenges. So what now?

Parents
  • I'm 35 I'm due my asd assessment in March and honestly how much I relate , I could have wrote this myself.  I just need someone to understand, I want a friend , I want to "fit in" .

    Even now lost , jobless ,unable to manage and cope . I'm not accepting of autism,  but this doesn't change me , autism is me. 

    But realisation hits hard questioning... everything.

    I feel I've became so burnt out I feel more autistic,  often get gaslight , everyone  Dislikes things, everyone has their own opinions. Everyone is abit autistic...

    Invalidation hurts , I'm not pretending... wish I could hide again and be the person I was and not lift the mask....

  • I can accept being autistic, but not knowing until im 59 upsets me. Like ....oh yes your autistic thats why you have had such a hard time, nothing you have done  thats just the way it is. Well thank you for finally telling me!

    The time and money wasted in trying to feel better.

    Like you i think i am so burnt out i cant do anything about it. Im offered an increase in antidepressants, but im not depressed  i dont want more brain fog. 

    I dont want to fit in anymore i dont really care now. We can finally be ourselves and understand our challenges and embrace our qualities

    I hope you find your people, they are out there somewhere. X

Reply
  • I can accept being autistic, but not knowing until im 59 upsets me. Like ....oh yes your autistic thats why you have had such a hard time, nothing you have done  thats just the way it is. Well thank you for finally telling me!

    The time and money wasted in trying to feel better.

    Like you i think i am so burnt out i cant do anything about it. Im offered an increase in antidepressants, but im not depressed  i dont want more brain fog. 

    I dont want to fit in anymore i dont really care now. We can finally be ourselves and understand our challenges and embrace our qualities

    I hope you find your people, they are out there somewhere. X

Children
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