Published on 12, July, 2020
I was diagnosed with autism at very young age
My mum never told me and I found out through a psychiatrist when I was on a ward about my Autism when I was 17
Ive just moved doctors and I have an Autism gp passport I sent in. The doctor had a phone appointment with me and said they can't find any record of my Autism. My old doctors was trying to put a case forward for ASD specific counselling - which already has a long wait list. I’m really worried now as they don’t have my diagnosis so my referral might stop but I’ve had support through college and university for my autism so I’m really lost what to do - I can’t wait two years to get diagnosed a second time and I don’t speak to my close family who live back in my childhood city.
Has anyone got any words of advice for a 'lost diagnosis'. I'm really getting worked up
Goodness. You shouldn't have to go through all that all over again. It's worthy of a complaint that that has been lost that should be permanently on your records, mental health should have a record. They keep their records longer than a GP would.
If the NHS has lost it altogether, can you approach the school and/or college. If they were giving you support they would have had a record of that.
Once you iron that out ensure your GP permanently flags the system that you are autistic like they would if you had a rare blood type or a peanut allergy so that follows you everywhere. If you can get hold of a paper copy of the prove - file it and hang on to it.