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focus

I would like to introduce myself. I am mother to an 8 year old boy whom we have just been told by the clinical psychologist has aspergers. It has taken 18 months to get this diagnosis as they first just said he was an anxious child, it's only that they were going to do some work with him that they have changed their minds. We asked for him to be refered as we have suspected he was autistic for a long time. He has lots of sensory issues. He won't eat most thing, doesn't like smells, won't wear certain clothes and needs cuddling all the time. he is very dependent on me and worries when he doesn't know what I'm doing or where I am.

I wonder if anyone could point me in the direction of some information to give to school about his eating issues as they keep making him eat things which causes great distress at the time and when he gets home full meltdown and a very bad nights sleep. I have been in to talk to them but would like to give them some leaflets.

Any advise please.

  • That's FAB news :) hopefully you could explain his anxiety issues to his school and any tips or advice the C.P shares with you you could share with them :) Fingers crossed things start to change for him :)

  • Hi,

    Thank you for asking.

    Appointment was really good. The C.P. said my son is very anxious and is prepared to do some work with him. They started on looking at how he feels when he's worried and what happens just before he has a meltdown. He seemed to respond really well.Smile

  • focus said:

    We are going for an appointment tomorrow with the clinical psychologist to look at other areas like anxiety. Smile

    How did you get on.? Hope you had some joy :)

  • Hi,

    Thank youfor your replies. my son also is on the gifted and talented as his maths is way beyond his years.

    School have not be very supportive in all this process at all. they will not allow packed lunches as they say it's part of the social life at school to all sit together and eat a meal. So I'm collecting as much iformation about sensory isues as possible to give them. they have been a lot better since I told them about the diagnosis.

    We are going for an appointment tomorrow with the clinical psychologist to look at other areas like anxiety. Smile

  • Hello.

    Your son sounds just like my son.! My son turns 8 next month and we have been fighting for someone to listen to us since his nursery had concerns at age 2. It wasn't until we moved house and he started at a new school in year 1 that our world's changed. Firstly they thought he was "gifted & talented" as he was way above his age group for reading and writing but that was his "thing" and something he still loves but everything else is a struggle.

    When he entered year 2 we raised our concerns and the school also approached us due to his anxiety and sensory issues. we pushed for a camhs and OT referral and after just 12 months he has been diagnosed with Autism spectrum, Dyspraxia and elements of adhd.! He has also recently started to have blackout episodes so we are waiting for an eeg to determine petit mal epilepsy. 

    Where as your son loves cuddles mine is the opposite, he hates to be cuddled and didn't cuddle us until he was 5 and his sister was born. He is very fussy with foods and what he will eat must not touch on the plate or it goes in the bin. My son will not eat school meals so we provide him with a lunch box that he helps to prepare in a morning so that he knows what he has and that works for him. My son will not wear clothes, at home he wears his underwear only and its a struggle to get him in his school uniform.!! 

  • Hi - welcome to the forums.  Sounds like it was a bit of a haul getting the diagnosis but at least you finally got there.  Have you asked for a statement of educational needs so that he can get support, such as a TA in school, inc at playtimes + lunchtime?  This cd help with the school's attitude re. his food issues.  Also it might be an idea to get 1 of the professionals who diagnosed him to write to the school re. his food issues.  As the school don't seem to understand about food, would I be right in thinking there are a number of things they don't understand about him?  If so then it's going to be a v stressful time for all of you, but especially your little boy.  There's lots of info via the home pg so there may be stuff you can download to give to the staff.  If I were you I'd keep a close eye on how they relate to your son.  There are some people who are v willing to learn + some who can't be bothered, yet they all have to interact with him daily.  My son's an adult now + I don't think you can beat autism-specific staff, something I've learnt thru experience (sometimes the hard way.  Good luck with everything - hope things settle down soon.