This is all new

I would like to introduce myself. I am mother to an 8 year old boy whom we have just been told by the clinical psychologist has aspergers. It has taken 18 months to get this diagnosis as they first just said he was an anxious child, it's only that they were going to do some work with him that they have changed their minds. We asked for him to be refered as we have suspected he was autistic for a long time. He has lots of sensory issues. He won't eat most thing, doesn't like smells, won't wear certain clothes and needs cuddling all the time. he is very dependent on me and worries when he doesn't know what I'm doing or where I am.

I wonder if anyone could point me in the direction of some information to give to school about his eating issues as they keep making him eat things which causes great distress at the time and when he gets home full meltdown and a very bad nights sleep. I have been in to talk to them but would like to give them some leaflets.

Any advise please.

Parents
  • Hi - welcome to the forums.  Sounds like it was a bit of a haul getting the diagnosis but at least you finally got there.  Have you asked for a statement of educational needs so that he can get support, such as a TA in school, inc at playtimes + lunchtime?  This cd help with the school's attitude re. his food issues.  Also it might be an idea to get 1 of the professionals who diagnosed him to write to the school re. his food issues.  As the school don't seem to understand about food, would I be right in thinking there are a number of things they don't understand about him?  If so then it's going to be a v stressful time for all of you, but especially your little boy.  There's lots of info via the home pg so there may be stuff you can download to give to the staff.  If I were you I'd keep a close eye on how they relate to your son.  There are some people who are v willing to learn + some who can't be bothered, yet they all have to interact with him daily.  My son's an adult now + I don't think you can beat autism-specific staff, something I've learnt thru experience (sometimes the hard way.  Good luck with everything - hope things settle down soon.

Reply
  • Hi - welcome to the forums.  Sounds like it was a bit of a haul getting the diagnosis but at least you finally got there.  Have you asked for a statement of educational needs so that he can get support, such as a TA in school, inc at playtimes + lunchtime?  This cd help with the school's attitude re. his food issues.  Also it might be an idea to get 1 of the professionals who diagnosed him to write to the school re. his food issues.  As the school don't seem to understand about food, would I be right in thinking there are a number of things they don't understand about him?  If so then it's going to be a v stressful time for all of you, but especially your little boy.  There's lots of info via the home pg so there may be stuff you can download to give to the staff.  If I were you I'd keep a close eye on how they relate to your son.  There are some people who are v willing to learn + some who can't be bothered, yet they all have to interact with him daily.  My son's an adult now + I don't think you can beat autism-specific staff, something I've learnt thru experience (sometimes the hard way.  Good luck with everything - hope things settle down soon.

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