new to this

Hi there, I joined a few weeks ago, but haven't been able to formulate a post until now. Forgive me if it's not in the right place

I've recently come to realise at the age of 56 that that I am probably autistic. This realisation comes with a sense of relief as I have always been different to others and couldnt understand why, yet has also come as a bit of a surprise as I thought I would have realised earlier.
My grandson may be autistic, so I had been looking up some information. When I did the online AQ test by Simon Baron Cohen, I scored 42 out of 50.(the threshold is 26) I did it again a few months later and scored 46. I then proceeded to do other tests which also showed i am probably autistic.

My obvious traits include stimming: I used to jump on the spot for up to 20 minutes at a time, right up and into my 40s. Also hand flapping and ringing which I still do when I'm alone.
Then there's sensory issues, I can't bear loud noises, sudden noises. People eating crisps near me actually makes me agitated and tearful. My hearing is very acute
My sense of smell is also acute, since I was a child, cigarette smoke has made me vomit, I have a phobia about them.
I cant bear to touch certain fabrics, some days I struggle to find anything comfortable to wear, so tend to wear the same clothes for years. I cant touch old books or cardboard.

I don't like being in Social situations, the thought of going back to my huge call centre is terrifying me. I had adapted well to working from home over the last two years, as there is nobody talking next to me, no bright lights or other upsetting stimuli.

I passed my driving test when i was 23, but hate driving and haven't done so for years I find it too confusing and overwhelming.

Despite masking much of my life, I have never understood things like fashion and an "in crowd" never had a really close friend, absolutely hate change of any kind unless I'm the one who instigates it, I have meltdowns if I feel I'm not being understood or something upsetting has happened outside if my control. Hence, I have severe anxiety which I have never discussed with my GP. I only visit when I have something causing physical pain, as I feel appointments are only for those who need them, and I don't need one.. do I ?

My husband bears witness to all this, and my mum remembers me being a lonely outsider and the jumping and hand flapping.

However, due to my extreme anxiety I am reluctant to make a GP appointment and discuss referral in case I am not believed. That would make my anxiety worse

I just simply cannot commit to making the first step towards possible diagnosis, I feel so overwhelmed by everything. I'm exhausted. and i have probably forgotten to mention many other things too.

Thanks for taking the time to read this. 

Parents
  • Hello and welcome to the forum.  To get a referral from your GP you probably don't have to see them.  I sent a letter (this is last December) detailing my autistic traits together with the score from my AQ50 to my GP asking for a referral.  They took their time but it went through a couple of weeks ago and now I am waiting for a response from whichever NHS department deals with such things in East Sussex.

    You might have to phone reception at your GP to find out who best to send the letter to but you shouldn't have to see anyone - GPs often don't know much about ASD anyway.  

  • Thanks for your reply and the information Paul. I wonder if the process is the same here in Scotland. Sending a  letter would be much more preferable than an appointment (not that they are doing face to face appointments anyway) so I hope so. They have a practice email address, I'll contact them there first, see if I get a response.

  • Good luck - however don't expect to get to see a specialist anytime soon, the waiting lists are very looong.

Reply Children
No Data