Hello, I'm new here..I'm wondering what did people say to you when they first realised you were autistic?

Hi, this is my first post ever. I guess I just want to say something to strike up conversations with other autistics because I am feeling even more alien to NT's than before I was diagnosed. I was diagnosed with Dyspraxia too which affects coordinated thinking and movement, and sequencing of learned behaviour and movement.  

I was first told I had trauma based autism because I had severe shutdowns in hospital after major surgeries, like I couldn't stand and my eyesight/hearing went distorted and my limbs tingled, felt nauseous, had migraines, needed silence. I'd have to lie flat unable to talk to anyone for hours or days. I don't quite know if trauma is actually a cause of autism, or rather just some of it's symptoms it seems. 

Then a couple of years later, I realised that whilst I did have trauma growing up, I also showed all the signs of being autistic very young. 


I've been estranged from my family for many years, I've been focussing so hard on 'fixing' myself, ready to go back out there and build a life more true to me, free of oppression, only to find out that on trying to do this, I still suffer crippling nausea and dizziness and sometimes chest pain all due to the anxiety of feeling so alien around people or just not liking the noise level or light level, or speed someone is driving if I'm in a car with them.

I have a boyfriend who has known me many years before we got together too, and so my diagnosis hasn't changed the way he views me, but he doesn't quite understand how hard I am finding the diagnosis. I feel just being myself and taking up space in the world in the way I do makes people feel I'm weird, I am constantly wondering whether people see that there is something different with me or whether they just don't care either way..like how in the matrix those agents appear whenever people realise Neo is different from the crowd. 

I was bullied a lot at school and work and judged as aloof, disinterested in people, over sensitive or blunt, always late for things and always for some reason or another feeling nauseous or low energy. My boyfriend says the general way NT's think is when they meet someone, especially if it's a new colleague at work etc, they think "are you going to help me or get in my way" when it comes to life and success both socially and with career. 

I've tried to start telling people I'm autistic as subtly as possible, to see what effect it has on peoples tolerance or general understanding and to see what effect it has on my anxiety levels around those people.

I've had reactions as simple as "oh right" all the way to "oh so you must like trucks!"..I know that people just want to say something to relate to me and be nice..I think I just wish more NT's knew what being autistic means, but I think few NT's are even aware of how their own neurology works let alone someone elses. 

I am interested in hearing what reactions everyone else has had from telling people they are autistic, what did people immediately say to you? Did they say something assumptive to try and relate to you, which in turn actually makes you feel they have pathologised you? Or were you pleasantly surprised with anyone's reaction? 

 

Parents
  • Hi,

    A bit like you I went through trauma (completely different trauma to you tho), so I assumed that was why I thought differently and behaved differently. and then one of my teachers 'diagnosed' me, she came up to me and was like "you are autistic" and then a couple of months later Camhs said that I was showing signs of being autistic and fast forward 2 years and I am diagnosed!!

    I kind of told the world when I got my diagnosis. I think it was because it was such a relief to know there was a reason for my 'weirdness'. I had a lot of different reactions, some people were really rude and said: "I am so sorry" which is the strangest reaction because I don't view it as a bad thing at all however they obviously did. some people decided to tell me that they were 'a little autistic too' which is just annoying because I know that they aren't. someone who I think a lot of reacted completely differently to how I expected (not in a good way), she said "no you aren't, you don't constantly fiddle with things, you just have OCD" (her exact words) which hurt because I didn't expect that response from her. a lot of people didn't think much of it though. but yeah i had different reactions from people.

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  • Hi,

    A bit like you I went through trauma (completely different trauma to you tho), so I assumed that was why I thought differently and behaved differently. and then one of my teachers 'diagnosed' me, she came up to me and was like "you are autistic" and then a couple of months later Camhs said that I was showing signs of being autistic and fast forward 2 years and I am diagnosed!!

    I kind of told the world when I got my diagnosis. I think it was because it was such a relief to know there was a reason for my 'weirdness'. I had a lot of different reactions, some people were really rude and said: "I am so sorry" which is the strangest reaction because I don't view it as a bad thing at all however they obviously did. some people decided to tell me that they were 'a little autistic too' which is just annoying because I know that they aren't. someone who I think a lot of reacted completely differently to how I expected (not in a good way), she said "no you aren't, you don't constantly fiddle with things, you just have OCD" (her exact words) which hurt because I didn't expect that response from her. a lot of people didn't think much of it though. but yeah i had different reactions from people.

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