Life quality

Hello everyone, 

My name is Charlie. I live in Denmark with my wife and two kids - both kids are on the spectrum in each their way Slight smile

I'd really like to get some input from all of you regarding: 

1. Do you feel content (edited from contempt) with the quality of life you are living?

2. What efforts are you making to improve you life?

I'll kick in with my own experiences along the way - but first I'd really like to hear your experiences.

All the best, 

Charlie

Parents
  • 1) uh, life kind of sucks, as someone who was diagnosed super late in life. people like me, 'higher functioning' whatever that might mean, supposedly have it pretty shitty. i can attest to that whole heartedly. 2) i am in therapy with a specialist in asd, 2x a week. i seem to also have a sort of self survival instinct - i live super healthy, but have a variety of health issues, undoubtedly related to my asd. but, many of my pals have health issues............. many are probably on the spectrum. since i am now aware of my sensitivities, whereas before iwas oblivious, i now try to mitigate them. and ihave every sensitivity known to man, aliens, microbes, fungi, cave men, cave women, cave others (with all respect), big foot, and planetoids. (i am not sensitive to those things listed - i'm sensitive to everything known to anything, anywhere, anyhow, anywhoe, anytime)

  • I sorry to read about your hardship in life. Yes, the term "higher functioning" can be quite a ***. I've always struggled to make people understand that I was unable to do / behave as they expected. I don't look different. I am intelligent. So people expect the basics to be easy for me, which they just weren't. Have you tried mindfullness and meditation like describes above? I am not far in my journey as an aware autist, but I've come to understand the power of controlling ones mind. Don't know if that could make a difference to you?

Reply
  • I sorry to read about your hardship in life. Yes, the term "higher functioning" can be quite a ***. I've always struggled to make people understand that I was unable to do / behave as they expected. I don't look different. I am intelligent. So people expect the basics to be easy for me, which they just weren't. Have you tried mindfullness and meditation like describes above? I am not far in my journey as an aware autist, but I've come to understand the power of controlling ones mind. Don't know if that could make a difference to you?

Children
  • mmm.. i'm wondering how much to reveal about my asd. i've been revealing it more and more, particularly to friends. to the outside world... since i am retired, it is less of an issue. yes, i guess it's a two edged sword. best of luck on your loan! 

  • Yes, I found Tai Chi and Chi Gung super helpful, and Alexander Technique for untensing my body and connecting more with it. Being in nature by fell running helps me too.

  • Well, the progressive part still feels rather superficial in many instances. There is a will to be inclusive, but if you have an autism diagnosis, you loose a number of rights and options. Can't go to the army or police. Very hard to get a job. And just a general attitude of "Wow, good for you that you know now. Let's talk about something else". I'm not sure where the boundaries for the autistic life actually lies in Denmark, but it still feels very insecure to have it out there. We are looking into making a loan in the bank to buy a house. And just to be sure, I removed every evidence from social media. Just in case. 

  • i just have never been able to do meditation, etc... just drives me up the wall. i have done feldenkrais, which is somewhat similar, and tai chi. so i guess i'm into movement. yeah, i feel like i'm "high functioning" whatever that means, but with many drawbacks that really sabotage me.  

    otherwise, i do intermittent fasting, trying to figure out how to mitigate my meltdowns (which i was never aware i had), and how to deal with my sensitiivites... i was diagnosed at 62. since my diagnosis, i've been gradually becoming aware of how disabled i really have been, without even knowing.

    how is life in denmark being on the spectrum? i think? denmark is super progressive????