• Replies 6 replies
  • Subscribers 68 subscribers
  • Views 1016 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

Hi i'm new is anyone else struggling?

CuppaT

Frown My daughter was diagnosed a few months ago and i'm REALLY struggling to talk to family members/friends about it. My mum and mummy buddy know but that's it

It feels like im labeling her or telling people to lower their expectations of her (negatively) please help.

 

  • Hi CuppaT,

    I found it difficult to begin with my daughter being diagnosed ASD, yet believe special children do come to special people and my daughter is a blessing in disguise.

    As a parent it is our jobs to educate others to the wonderful world of our children and for us as parents to become educated also, this will allow people to better understand.

    You will no doubt go through lots of different emotions to begin with, as crystal12 said your child is still the same child.

    I felt similar to yourself so changed the way I was thinking about it all and don't see it as a label, I see it as a diagnosis which is exactly what it is and began to accept its part of who my princess is.

    Be kind to yourself :-D

  • hi - bw is best wishes.  Hope you find the posts helpful.

  • Thank you again Crystal.......what does bw mean plz?

     

  • hi again - go back to the community page.  There are headings such as "diagnosis + assess't", "parents + carers" so you shd find some posts there.  You cd also type diagnosis into the search engine at the top right hand corner on that page.  People will come along to answer your post as well.  Once you get your head around it all, it is a big deal, then you can feel more confident about talking to others about it.  Just remember how much you'll be able to help + support her.  bw

  • Thank you Crystal

     

    My daughter was diagnosed with ASD aged 2 and 10 months she is now 3 and 3 months.

    Where can i find the posts about parents coping with diagnosis plz?

    p.s bw? sorry to be dim.

  • hi CuppaT - There are lots of posts on this site about parents + their feelings about diagnosis which could be helpful to you, so have a look if you haven't already.  Could you give us a bit more info about your daughter's diagnosis/age?  That wd help posters with with replies.  Also will she be getting a statement of educational needs to help her with support at school?   ASD can be difficult to explain + for others to grasp so family/friends will have to know at some point - take your time till you feel ready.  Getting a diagnosis (label) is important.  Your child is the same child she was before the diagnosis, only now you + others close to her will be able to develop thru learning a better understanding of how autism affects her as an individual.  Without the "label" my son wdn't have been given the support he needed.  His life + mine wd have been much more difficult.  Because of the diagnosis I started to understand his better, why he did certain things + not other things.  Over the yrs I think my understanding's improved as he's developed + become the individual he is today.  bw