Published on 12, July, 2020
Hi
Registered a couple of weeks ago.
Already feeling at home here.
Thanks everyone for sharing their experiences and tips - really helpful. If I pick up any along the way, I'll share too.
I'm starting on my journey towards diagnosis as an adult partly because like many others I've always experienced that sense of not fitting in and have seriously suspected ASD for about 15 years now partly because we've had to get one of our daughters assessed (she's on the long waiting list for child assessments) so I owe it to her to get myself in order so I can help her through life and lastly because the natural chaos of family life and being peri-menopausal seem to bring out the worst of my ASD traits and my ability to mask and cope is wearing out - I need my workplace to adapt in order for me to continue working and in order for that to happen I feel I need a formal diagnosis.
Anyway - nice to meet you all.
ItsMyMind
Hi! Welcome to the group I'm in my 20s and currently awaiting my diagnosis; I also wanted to understand myself better and felt the need for adaptations at work. I've been on the waiting list for a year now. It's good that you're getting your daughter support at an early age - I hope you both get the answers you're looking for.
Thanks DuckBread :-) A year is a long time to wait. I’ve just managed to get my referral completed by my surgery after much too-ing and fro-ing (since July!!??). I’ll be phoning the assessment provider this week to find out about waiting times. I’m the sort of person who hits the wall all of a sudden; so when I finally get to breaking point (I’m there now) I have nothing left in the tank to keep me going so I’m not looking forward to a long wait for assessment :-(
That's a long time to wait for a referral too! I know what you mean - I'm quite similar. I really hope you feel better soon and don't have to wait too long. It might be worth calling the assessment centre to find out what the wait times are usually like. While you're waiting, I've found Purple Ella's YouTube videos very helpful. She has lots of great tips (I think there's even a video on what you can do while waiting for diagnosis), so you might find some useful strategies that you can start trying now.
No problem
Thank you Duckbread; will be having a look at Purple Ella’s YouTube videos