I am a woman in her 40’s and I suspect my 10 year old son may have autism. I would have said Aspergers but realise that is no longer a diagnosis. I have been researching autism trying to decide if there would be any advantage in a having him diagnosed. I wonder if it would help him understand himself and who he is in the world more or if it would just be a label people misread. During my research it struck me quite unexpectedly that I am Autistic. Well I believe I am and wonder if a diagnosis would help me also. I have always wondered what the hell was going on with me in the world and realising I may be Autistic gave me a great feeling of relief and also a bit of grief for all the time wasted wondering what the hell was going on. Looking back it seems obvious now. I didn’t talk until I was 3 and then spoke in sentences. I’ve always been socially awkward and one of my worst fears in life is small talk. Anyway, I guess that’s it, I don’t want my son to wonder what’s “wrong” with him if a diagnosis could tell him what is different about him instead. Is a diagnosis helpful?
Hi there, I’m a 38 year old woman, diagnosed with Aspergers at the end of last year. I do believe that some assessment centres are still diagnosing Aspergers until the ICD-11 comes into effect fully in 2022. Although some have already switched over to the single diagnosis of Autism Spectrum Disorder. It just depends on the centre and the preference of the clinician as to which manual they use as a diagnostic tool. It’s not uncommon, after realising that one family member is autistic to then realise it about other family members too. Once I realised my own autism, I also realised it in my eldest daughter, my youngest has global developmental delay and there is definitely autism in the mix there, my mother, uncle, cousin, etc. It’s a bit of an odd ‘lightbulb moment’ when you realise that you yourself are autistic though isn’t it? Suddenly everything makes complete sense! Personally I would say that getting your son diagnosed would be helpful, it should, in theory, also enable you to get some level of support for him at school, if he ever needs it. It might help him if he goes onto higher education and needs to access disabled students services. Of course it will also help him to understand himself. There are still times now that I wish that I’d been diagnosed when I was a child so that I hadn’t ended up spending my whole life wondering what on earth was the matter with me. Hope this answer helps. Good luck with whatever you decide to do.
Thanks for your reply. You are so right about the lightbulb moment! I guess understanding disability support for my son for autism should he be diagnosed and need support is a tricky one. He already receives disability support for a vision impairment so I guess I’m wondering if a diagnosis would help there at all unless there is some specific type of support he would receive for autism that he doesn’t already. Apart from that I suppose I am wondering if a diagnosis is worthwhile solely for self understanding. I believe I would have liked to have been diagnosed earlier for that purpose but don’t know what other effects a diagnosis might have had. maybe I am overthinking the whole thing.
You don't have to disclose a diagnosis to employers if this is something you are worried about
Hi. I am a 51 year old woman in the middle of diagnosis process
I have gone through a phase of blaming my parents for not helping me more when there was clearly something 'wrong' with me at an early age and onwards. If I had known what the deal was I would have lived my life very differently than the catalogue if failures and sadness it has been. I do believe that if you help and support your child to a diagnosis now it can only be for good.
Best of luck with both your journeys x
Thank you but that is not my current concern but good to know
thankyou so much x
and best of luck on your diagnosis journey
My diagnosis in 2017 was Asperger's/ASD. The clinician indicated that she still favoured the term Asperger's in some cases, but wrote both down to make it clearer to any NHS GP who might ever just happen to read it. I somehow doubt that will ever happen, as I am no longer elligible for NHS treatment after years abroad. Yet another fine mess imposed on us by the increasingly wealthy & distant idealogues in big business politics.
A lot of my anxiety has been down to not knowing why I suffered with life as I do. After two and half years battling with the NHS for an adult diagnosis I went private, and got a yes, its ASD answer. Massive relief as it now explains everything. Interesting thing is you don't identify with having sensory or other issues. many things discussed in my assessment went along the lines of "what about this?", "isn't everyone like that?", "No", "Oh...", or me saying I don't have that issue and them saying "when do you find yourself in that situation", and me saying "never, I always avoid it". I think if you have lived with it, you have either learnt to live with it and take it as normal or you have worked your life around your issues and managed it well, such as the masking thing. In terns of your son, I would go for it, as it is probably easier to get an assessment for a child than an adult if he then later finds this need to know, and may have bigger issues later on.
For you, that is down to you. I could not cope with not knowing. I like everything black and white, and had anxiety over my issues and wanted to work out why. Unfortunately the NHS weren't much help so I ended up having to go private which cost quite a bit...
Good luck with it all and stay positive.
That’s interesting what you say about sensory issues. I have always had sound issues in particular. Loud noise bothers me and I can’t understand what someone is saying if I can’t see their mouth. (Hearing tested apparently I am fine). My son also has sensory issues which I always put down to vision impairment but now am thinking otherwise. Thank you for your feedback. I am glad you found relief with your diagnosis.