I hope I don’t offend anyone I apologise now if I do.
My partners got 3 children with his ex partner and the 2 eldest have recently been diagnosed with autism. He’s struggling to cope and I have a 17 month old son with him who doesn’t hold his own bottle or talk apart from row row and it might be normal but I’m worried that my son might have autism to I read stuff online and it scares me feel like I can’t talk to anyone.
His children in order of gender are:
what’s the likelyhood of our son having autism and where do I go from here?
thanks in advance
Hi there can I say the first two who gave advice are the ones to take notice of as there is nothing to worry about.
Let your health visitor know of your concerns and if you are really worried then talk to your GP as well.
The NAS has various good resources which hopefully someone on here will post links to for you. I am not good at such things.
May I say that the response from NAS38972, is a rather extreme account and happened many years ago.
Things are totally different now and you and your child will have plenty of help and support should your child be on the autistic spectrum.
please don’t worry to much, I am autistic and here I am reassuring you and others it is a difference but it isn’t wrong or something that’s broken and needs mending. It’s a different way of experiencing the world we live in.
Keep loving your child and as you are doing already ask questions and try to see into the many varied lives of being on a varied spectrum.
Big hugs from me and look after yourself as well.
Holding a child's hands or arms by me, to prevent any carefully offered nourishment by his mother in 6ml teaspoons one at a time to a maximum at a time 5 tea spoons does not correspond the Force Feeding Regime you seem to relate to. When we have employed carers the Local council have insisted for their Health and Safety that they were shown Restraint Techniques at the local Mental Health you seem imply a knowledge of. My son has never had such restraint to my knowledge by carers, but his eventual carers will also be trained likewise, by then I will be dead, it his eventual care I dread.
While I consider that you are obviously on the autistric SPECTRUM. You obviously have absolutely no experience of coping with another person at the extreme end of a SPECTRUM of handicaps to yourself. For a start My son handicap is recognised by HMG with a PIP SCORE of 47. What is your PIP Score of Handicap?
Read my second and last two paragraphs.
The latest comment from confusedmun18 give further reason to seek her doctors opinion, and ask for a blood test.
My son was very thin obviously by extremely physically active He could run away, and climb to the top of a small tree standing on the top like a bird.
Pip score is purely for benefits and has no medical basis as it is not assessed by doctors, please don't confuse the two. Also fragile x test has nothing to do with autism, it merely has some similar attributes that could mean misdiagnosis hence blood test for fragile x syndrome. Your first description of your sons "feeding" you described as force feeding. Most people would think the worst at that description. Although if he was that intolerant I would ask why you didn't have assessment or him be given a feeding tube.
Lastly handicapped is not really an acceptable phrase these days I know it used to be
IN RELATION TO YOUR STATEMENT A PIP SCORE HAS NO MEDICAL BASIS.
While the PIP investigation decides on a persons level of disability with a score depending on the disabled persons ability in completing tasks ie a score as to how that person is disabled with 12 points being the maximum needed for maximum disability benefit, In order to get a Blue badge the disabled persons ability in regards to mobility is assessed. with again a further score of 12 points needed in order to get maximum mobility allowance and with it a Blue Badge to enable the disabled person to park in designated spaces. To get mobility allowance the disability has to be a physical disability. This Benefit has to be assessed by a medically qualified person.
In fact I requested in the case of my son, he be examined by a SPECIALIST DOCTOR of neurology, because his original diagnosis of autism at the age of 3.5 years was made by Dr Rosenbloom a renowned pediatric neurologist at the ALDERHAY HOSPITAL with a team of other specialists. In the time available they could not comply, but had another qualified person that I believed reasonable at the time (now buried in a full box file).
With this original diagnosis of autism I applied for an Orange Badge in relation to parking and was rejected, Then followed Many years of going to Tribunals, getting, rejected, appeals to a Court, More Tribunals In the end I finally got it to a MEDICAL APPEAL TRIBUNAL where he was examined by SPECIALIST DOCTORS and where he was running round the walls almost like Billy Wizz. Where he was awarded maximum Mobility Benefit, initially for one year, it has been continuous since then. I was able to show his disability was Physical and not Mental, as had been presumed to deny him and others a benefit.
Lots of autistic people have blue badges. So do lots of other people.
I never said that you didn't get supporting evidence from doctors for pip (common sense) merely that pip itself is not a "medical assessment" it is a "benefits assessment " and what you described is MOST people's struggle to prove what doctors (medical professional)say about your (or in your case your sons) conditions and how they affect you to a pip assessor (specialist benefits advisor) who generally reports differently as they are not doctors. Thus meaning a pip score is not a medical gauge of how disabled you are.
New blue badge rules coming in
Not that anyone even mentioned blue badges but still.
It's not a competition, you used your sons pip score to try and validate your point over someone else's, who questioned you due to your own wording and pointed out that practice is different now.
Could I also point out that although lack of trying to feed as a baby has been documented as possible indication of severe learning difficulties (what you called handicapped) this is not widely used as a gauge early feeding problems (within first week) are more likely caused by blood sugars, infection, cleft palate and many others.