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hi,new member here

arnie j

hi everyone,my name is jason and im a single father to my daughter who has autistic spectrum disorder and learning difficulties,hoping to make some friends and talk to people who understand,i love music,(my daughter is obsessed with music)especially northern soul music,i also love lots of different music too and wildlife,lookin foreward to joining in on things when i pluck up the courage

jason

  • Hi Jason,

    I'm glad Callie is settling into her new daycare system. I think it's very hard for our children when long term things, such as school, come to end and they have to find something new. I'm dreading it when James leaves school, but we've got a few years yet, so I worry about the here and now, not the future.

    In answer to your question, James stays at his dad's two - three weekends a month, so that is my respite. Without that space I think I'd find it really hard. His dad and I separated in 2004 but he's always been there for James. I do believe his dad has Asperger's too.

    James has been on medication - Sertraline for a few years now. It's an anti depressent to help him cope with his extreme anxiety. He's only on a small dose but I think it has worked quite well. I know there's a stigma attached to kids and medication, but I don't really care, it works for James and as long as he's coping, that's all that matters.

    You made me laugh about other kids constantly on xboxes all over the world ..... that's him alright! His dad says he's awesome and beats adults hands down! At least with the xbox they can talk to others through their headsets, so there is some socialising (if you can call it that) and at least I know he's safe, not being bullied or picked on by gangs over the park. Everything has it's ups and downs.

    Hope you enjoy the weekend. The weather here is beautiful. I'm in Surrey btw.x

  • hi indie girl,my daughter has very recently left school, but she was at a special school with students of varying degrees of disabilities,some i think had aspergers,callie (my daughter) absolutely adored school and is still adapting to her new daily routine,which is a community based daycare,do you get any respite ? i ask because respite has helped me and callie enormously ! to be honest she needs time away from me and i need time away from her sometimes because,as im sure you are well aware,it can be a very difficult life sometimes,also does james take any medication ? that can help a lot ive found,some of the calming meds are very mild and can help at difficult times,sorry i cant help much,i know of other parents whos children have aspergers and they are on xbox constantly playing against other people all over the world !

    jason x

  • Hello Jason and welcome. I'm new on here too and I hope you find some support the way I have. I have a 14 yr old boy with Asperger's syndrome and I find the going pretty tough at times. Like you and your daughter we both love music - you can tell which genre from my name! I also love a bit of northern soul.

    Can I ask .... is your daughter in education? Or what kind of education did she recieve. I'm just curious as it's an area we struggle with. My son James is at a special needs school for students with high functioning autism and Asperger's but he still struggles with stress and anxiety to the point it's hindering his education. If he had his way he'd be on the xbox 24/7 with a set of headphones on!

    Try not to feel nervous, your amongst friends here.x

  • crystal12 said:

    hi Jason - I joined a few days ago and am pleased I did.  Sounds like your daughter has inherited your love of music - that's something you can share together and expand upon on whilst enjoying yourselves at the same time.  My son, an adult, also likes music.  He's got a good set of headphones + really appreciates the difference when he uses them.   He isn't interested in animals at all except when they approach him as he can't gauge their reaction and is nervous of being attacked by them.  We've had our moments with that.  How's your daughter doing?  

    crystal12

    hi crystal12 and thanks for the reply,my daughter is 19 now,she has about twelve mp3 players,most of them are broken cos keeps takin her headfones jack in and out of her players,she also twists the mp3 players so the headfone wire twists too and eventually breaks,costing me a fortune in players and headfones lol,she also loves argos catalogues,the book of delights lol,shes been living with me since she was a baby and although i struggle terribly sometimes i wouldnt swap her for the world,once again thanks for your warm welcome,im still nervous with all this

    jason

  • hi Jason - I joined a few days ago and am pleased I did.  Sounds like your daughter has inherited your love of music - that's something you can share together and expand upon on whilst enjoying yourselves at the same time.  My son, an adult, also likes music.  He's got a good set of headphones + really appreciates the difference when he uses them.   He isn't interested in animals at all except when they approach him as he can't gauge their reaction and is nervous of being attacked by them.  We've had our moments with that.  How's your daughter doing?  

    crystal12