Published on 12, July, 2020
We are looking for advice about our 9-year-old daughter who has just been given ASD (high functioning) and ADHD diagnoses. The issue we are wondering about is the CAMHS advice that we should tell her these labels apply to her.
I think future support through an EHCP/statement (which she does not yet have) may depend on her being told and that this is justified because naming the problem helps you to face it.
We’re struggling with the potential stigma (from self as much as from others) it could bring for someone who is already low in confidence.
We are clear that the ADHD is an issue (she has very strong hyper-focus, poor ability to plan or stay with a task, etc) and find that less sensitive. The ASD is less clear to us because shyness often seems an equally good explanation (eg for poor eye contact) and because she is intensely social (begs for playdates, usually generous and warm with friends despite preferring to talk than listen).
Any advice/experiences welcomed with thanks.
Hi NAS37992
I am sure our knowledgeable community will jump in with advice. In the meantime, I am going to send you some links to our post diagnosis information.
Post-diagnosis can be a very nervous time for any parent, but we're here to help you. In this link you can find information on the effects on your family, getting some practical support - http://www.autism.org.uk/about/diagnosis/children/recently-diagnosed.aspx - as well as telling your child about their diagnosis - http://www.autism.org.uk/about/diagnosis/children/recently-diagnosed.aspx##tell
If you have any other questions, or wanted some advice, you may like to contact our Autism Helpline team. They can provide you with information and advice on your issue. You can call them on 0808 800 4104 (Monday to Thursday 10am to 4pm, Friday 9am to 3pm).Please note that the Helpline is experiencing a high volume of calls and it may take a couple of attempts before you get through to speak to an advisor.
Best wishes,
Nicky-Mod