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So fed up!

Skelosia

When my son was in Year 2 he saw a Paed and got diagnosed with Auditory Processing Difficulties. The Paed said that he had ADHD and ASD traits, but didn't want to pursue assessment. He is now in Year 5 and we are back at square one. Back at the Paed in March. I just want to scream and cry. I want answers. I am sick of this. I am really struggling to cope with my son's differences because of the lack of answers. This could have been sorted 3 years ago. But no! ARRRGGGHHH (sorry, just wanted to vent somewhere where they may understand LOL) 

  • This is my biggest concern, and I told the SENCO as much. At the first Parents Evening (bearing in mind this is also a new school which he joined in September) and he has already been spotted as having self esteem issues by the welfare officer.

    Whilst this is a good thing for him, as he can now have the support, it makes me so, so angry. I know that the issues are partly down to my ineffective parenting, but had they listened, we may have all had the support we needed.

    I can only hope for a better future!

  • Keep fighting. Not getting the right diagnosis in childhood can lead to future self esteem issues and self doubt, not to mention poor mental health.

  • Good luck with that pooky!

    It is sooo frustrating isn't it? All we want is answer and help to be the great parents we are and they waste our time. Did you know? I have always thought Autism, though I am open to other diagnosis, but I will not be fobbed off with the easiest!

    I had a woman in from Family Support last year, in the hope she would help me get a diagnosis. All I got was 'boys will be boys' and with regards to his sleep 'his body is hungry for nutrients'. He is an extremely picky eater - he will choose hunger over something that he is not familiar with - so that was less than helpful. I am aware of all the things 'wrong' with him thank you very much. I want help to improve his life, not nit pick!

    Sorry, rant over!

    Hope everyone is doing well this morning.

  • Hi Skelosia - same here. I have been waiting four years for a diagnosis so know exactly how you feel. The lack of provision in this country for such struggling kids is appalling. 

    Anyway, my boy had his ADOS a few weeks ago and I am hoping, with all the other assessments they may be able to give some answers - but like you I am worrying about NOT getting answers and support. Feels like I have been in the dark too long now and my son is getting more and more challenging with his meltdowns. 

    Tired and exhausted!