Published on 12, July, 2020
Hi,
My four year old suffers with chronic constipation- 1 unbelievable sized poop about every four days (diet is amazing, lots of veg ect and take probiotics). Happy boy, wore clothes, went to nursery. He was started on high dose laxido 6+1 for everyday he didn't poop. The laxido turned the poop liquid but it still was not coming out and required urgent acute admissions for enemas (now doing these at home). My son was in extreme pain daily, I mean like a wild animal and biting his arm black and blue- relieved instantly by enema. We have stopped laxido and are now on lactulose and senna. Again nothing for four days and then pain and he requires an enema. The Drs diagnosis is autism- is is autism that's causing the slow motility and a sensory over reaction to the sensation as an explanation for the pain. I feel like I have been to war the last few months and am desperate for help and all I'm getting is autism and no investigations or tests?!?!? I feel that if any child had 21 sachets of laxido in there gut festering for three/four days they would also be in agonizing pain but would get investigations done. Anybody experienced anything similar?
Oh no that doesn’t sound good. Sorry to hear you’re struggling with these issues with your son. It must be really hard for you. I am aware that autistic individuals tend to really struggle with constipation and pain and other gastrointestinal issues. Can I make you aware of the fact that you’re not alone and all of us autistic people deal with the same issues. There is no easy answers but maybe you should go back to your sons health professional and seek more advice and or help. They should be able to answer all your concerns and guide you in the best possible way. I wish you and your son all the best of luck and good fortune. Take care.