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Diagnosis at last

lozzy1998

Hey everyone.

Not been on for a while as life was getting a bit much trying to get an assessment for my son. After 22 months of waiting we finally got there and have been given a diagnosis of Aspergers. This hasconcluded an 11 yr fight I have had for someone to agree that there is something and not my parenting.

Now we have the diagnosis where do I start? I have informed relatives and the school. I have had so many different emotions this week. Anger, Tearful, but most of all relief that someone has finally listened. Would be great for some advice and what to do next

Sharon

  • Like you I've battled for 10 years for a diagnosis of Autism for my son. He's been labeled as a naughty child, shy and it's heart breaking as like you I knew there was something else. Finally after going to a new school things fell into place and I was finally listened to. Hopefully in the next two weeks his diagnosis will be confirmed and I can start moving forward. It's heart warming to know others have achieved what I've begun and it spurs me on. Good luck with your future take each day as it comes and never give up are children are worth the fight.... 

  • Hi - take Intense's advice + you'll certainly be off to a vg start.  It's a strange feeliing when you finally, finally get what you've fought for for so long.  Sometimes not the feeling you'd expected, more a kind of relief rather than any thing else.  Take your time to adjust to the different circumstances.  We all need time to recoup, especially when the fight's been so long.

  • You start by looking into what you are eligible for, if you aren't already getting it.  Such as:

    DLA for your child

    Carer's Allowance for you

    Respite through social services (via assessment of need) if you are eligible

    Support groups (local parent support/NAS support/social groups for your child?)

    You look into what your child may need at school, such as a Statement of SEN or School Action/School Action Plus

    ...then you sit down with a big glass of wine and relax.