To Get A Formal Diagnosis or Not? ADVICE please!

I visited my GP yesterday and spoke to her for the first time about Aspie’s. She said that she would refer me if I wanted but posed the question what would it achieve? Or rather what would I want to achieve? What are my reasons for seeking one? 

I need some opinions and experience about self-diagnosis vs formal diagnosis...I have some reasons already which I will inevitably list at some point...

but for now I’m just interested in a general opinion so I can make the choice a little easier...

many thanks for your helps!

Parents
  • in my case it made a lot of sense of problems i had my whole life before diagnosis i thought i was just really weird but now i just know  i have a disorder and not to beat myself up plus it helped able to access certain services that i couldn't before such as getting me a key worker to help with things i used to get my mum to do the problem with my mum helping me 247 was that i was making my mum very tired and stressed having her help me so often with all aspects of life. now im heading slowly towards being  more independent and possibly moving out my mothers house after diagnosis i can get  help to find more suitable housing options that i could before diagnosis. as well as now being able to access the correct benefits i am eligible for as before i had to struggle 

  • I’m glad it’s been positive for you and that it’s helping you to be independent. 

    I recognise what you’ve said in the first sentences. I’ve spent forever feeling left out and seeing myself as weird and just wanting to be understood, knowing that there wasn’t something typical about me and feeling bad about myself - it’s affected my self esteem, confidence, jobs, relationships and so many little things. I’ve frequently thought I’d be better off in a hut by the sea on my own away from the chaos, confusion, misunderstanding and rejection, either a hut or just better off dead. But my finding my girlfriend has helped me so much, she’s very understanding and supportive. She’s helped me be better at facing the world more openly.

    thanks for commenting

Reply
  • I’m glad it’s been positive for you and that it’s helping you to be independent. 

    I recognise what you’ve said in the first sentences. I’ve spent forever feeling left out and seeing myself as weird and just wanting to be understood, knowing that there wasn’t something typical about me and feeling bad about myself - it’s affected my self esteem, confidence, jobs, relationships and so many little things. I’ve frequently thought I’d be better off in a hut by the sea on my own away from the chaos, confusion, misunderstanding and rejection, either a hut or just better off dead. But my finding my girlfriend has helped me so much, she’s very understanding and supportive. She’s helped me be better at facing the world more openly.

    thanks for commenting

Children
  • Hello,

    If anyone reading this thread is ever unable to cope with distress or despair, it’s very important to tell someone about your feelings or thoughts of suicide. Call your GP and make an urgent appointment. Your GP can make sure you get appropriate help and support.

    If it’s outside your GP hours call  111  to reach the NHS 111 service:   http://www.nhs.uk/NHSEngland/AboutNHSservices/Emergencyandurgentcareservices/Pages/NHS-111.aspx

    The Samaritans also provide confidential non-judgemental emotional support, 24 hours a day on 116 123, or by email on jo@samaritans.org.

    MIND have information pages on coping with self harm or suicidal feelings based on the experiences of people who’ve been through it that you may find helpful.

    If you are ever very close to doing something to hurt yourself - call 999 or go to your nearest A&E department. There should be someone there to support you and make sure you get ongoing support.

    If you need help with an autism related issue, our helpline can be emailed on autismhelpline@nas.org.uk or they’re open Monday to Thursday 10am-4pm and Friday 9am-3pm on 0808 800 4104.

    Nellie-Mod

  • I agree with you and I'm 49 and a half and until I focused on some specific parts of the issues I've had all my life no one including me would have contemplated autism as the reason.  That still makes me very sad.  A tent, a caravan, a hut a  long way from anyone all sound appealing but normal life continues with no apparent way out.

  • I have had the feelings of wanting to live alone in the middle of nowhere away from society and also the feelings of not wanting to be alive.

    the fact you are alive today is a testament to your charisma. some people couldn't have stayed here so well done! keep sticking at it i know the feeling too well. for me at least for me it comes and goes but just know your not alone