17 yr Autistic daughter just refused PIP

Hi,

I am new to the forum as my daughter was only diagnosed with Austistic Spectrum Disorder last summer, after a year and a half of assessments. We applied for PIP last April (I am her appointee) and have just been sent a letter saying she will not receive it, despite never going out alone and not being able to cope with communication with people other than her immediate family, and that is limited. She scored 4 points for 'engaging with other people face to face' and 4 points for 'planning and following journeys'. Zero points for everything else, despite a face to face assessment where I explained that she goes out on average once a week, sometimes less, and is always accompanied. She has lots of sensitivities, particularly with food.

Has anyone else experienced this? I am preparing an appeal. It says on the covering letter ' I realise you have a disability or health condition and receiving this decision isn't the news you were hoping for'. It's a joke.

Parents
  • Hi

    my son just turned 16 and had to apply for pip instead of having his DLA - I sat through a gruelling session being interviewed and at one point listening got upset hearing all the things he can’t do and we have just been told he has 0 points for everything!!!he doesn’t leave the house agoraphobia has ASC and anxiety!! The interview was awful he picked all the skin off his fingers and she put he was calm and eloquent and gave eye contact -he did not!i Cant believe it and don’t know what to do!!we have had so many setbacks and I am tired of having to fight for everything!,at the moment I can’t stop crying.as if life isn’t hard enough!!

Reply
  • Hi

    my son just turned 16 and had to apply for pip instead of having his DLA - I sat through a gruelling session being interviewed and at one point listening got upset hearing all the things he can’t do and we have just been told he has 0 points for everything!!!he doesn’t leave the house agoraphobia has ASC and anxiety!! The interview was awful he picked all the skin off his fingers and she put he was calm and eloquent and gave eye contact -he did not!i Cant believe it and don’t know what to do!!we have had so many setbacks and I am tired of having to fight for everything!,at the moment I can’t stop crying.as if life isn’t hard enough!!

Children
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