Published on 12, July, 2020
Hi,
I am new to the forum as my daughter was only diagnosed with Austistic Spectrum Disorder last summer, after a year and a half of assessments. We applied for PIP last April (I am her appointee) and have just been sent a letter saying she will not receive it, despite never going out alone and not being able to cope with communication with people other than her immediate family, and that is limited. She scored 4 points for 'engaging with other people face to face' and 4 points for 'planning and following journeys'. Zero points for everything else, despite a face to face assessment where I explained that she goes out on average once a week, sometimes less, and is always accompanied. She has lots of sensitivities, particularly with food.
Has anyone else experienced this? I am preparing an appeal. It says on the covering letter ' I realise you have a disability or health condition and receiving this decision isn't the news you were hoping for'. It's a joke.
Thankyou.
I can't leave my home now, so I'm stuck for who I can have. She can take a long time but things eventually get done. I don't know how she got the job because she doesn't seem to know much about benefits or the law. Or maybe she does but doesn't want me to have them.
Trying to fight the council is no longer an option. I was labelled a complainer after my support worker stepped in. Since then the council & LGO worked together to refuse subsequent new serious complaints. They seem to be leaving me alone at the moment. But it's frightening how easily they get away with ignoring serious abuse by their staff.