Published on 12, July, 2020
Hi,
I am new to the forum as my daughter was only diagnosed with Austistic Spectrum Disorder last summer, after a year and a half of assessments. We applied for PIP last April (I am her appointee) and have just been sent a letter saying she will not receive it, despite never going out alone and not being able to cope with communication with people other than her immediate family, and that is limited. She scored 4 points for 'engaging with other people face to face' and 4 points for 'planning and following journeys'. Zero points for everything else, despite a face to face assessment where I explained that she goes out on average once a week, sometimes less, and is always accompanied. She has lots of sensitivities, particularly with food.
Has anyone else experienced this? I am preparing an appeal. It says on the covering letter ' I realise you have a disability or health condition and receiving this decision isn't the news you were hoping for'. It's a joke.
Thank you.
I agree, there is no way I could or would ever do that as a parent!
Please do not allow them to do this. The 1st advocate that I used was not very headstrong to be fair, even though she was lovely, there was no real backbone there. So she would not have been tough enough in this situation. As a result, I was allocated another one instead, and this is what made all the difference?
You have the right to ask for someone who can support you in your individual circumstances, and who is qualified to deal with it, every case is individual.
I too have had major dealings with the council, that one nearly went to court, but they backed down in the end, as I had so much evidence of them failing my son.
Please go for further help if you need to, and just explain how you felt let down before? Unfortunately, we have to shout loudly to be heard. Good luck x