Published on 12, July, 2020
Hi,
I am new to the forum as my daughter was only diagnosed with Austistic Spectrum Disorder last summer, after a year and a half of assessments. We applied for PIP last April (I am her appointee) and have just been sent a letter saying she will not receive it, despite never going out alone and not being able to cope with communication with people other than her immediate family, and that is limited. She scored 4 points for 'engaging with other people face to face' and 4 points for 'planning and following journeys'. Zero points for everything else, despite a face to face assessment where I explained that she goes out on average once a week, sometimes less, and is always accompanied. She has lots of sensitivities, particularly with food.
Has anyone else experienced this? I am preparing an appeal. It says on the covering letter ' I realise you have a disability or health condition and receiving this decision isn't the news you were hoping for'. It's a joke.
thanks, not a problem that's what these forums are for for us to help each other where we can I guess. Another thing I recommend you do is register as a carer with your council and GP and request a carer's assessment from your council - it is your legal right. I had a look and there is support for carers in your area- www.carersbromley.org.uk/ who have advisers who can help you navigate through this maze, they are paid to help carers such as yourself. Also try Carers UK website they have lot of useful guidance and a helpline also.
Good luck