Published on 12, July, 2020
Hi,
I am new to the forum as my daughter was only diagnosed with Austistic Spectrum Disorder last summer, after a year and a half of assessments. We applied for PIP last April (I am her appointee) and have just been sent a letter saying she will not receive it, despite never going out alone and not being able to cope with communication with people other than her immediate family, and that is limited. She scored 4 points for 'engaging with other people face to face' and 4 points for 'planning and following journeys'. Zero points for everything else, despite a face to face assessment where I explained that she goes out on average once a week, sometimes less, and is always accompanied. She has lots of sensitivities, particularly with food.
Has anyone else experienced this? I am preparing an appeal. It says on the covering letter ' I realise you have a disability or health condition and receiving this decision isn't the news you were hoping for'. It's a joke.
hi our son was asked to go to anassessment but if you get evidence from yr gp ,mental health worker or whoever u get support from they will look at all the evidence and talk to the nominee on the phone ,me in my case,and he didnt have to go it would have set him back days even weeks if your child couldnt cope wiyh this assessment i suggest u try this route tell them how poorly it would make yr child it worked for us he was awarded high mobility and the high enhanced bit,he doesnt leave room doesnt eat etc exactly same stand yr ground good luck to all of u x